hi Melanie

I have some information on Cryoablation, if you need more info, please
let me know.

in the mean time, you may wish to check out the Cryocath website at
http://www.cryocath.com/
they are the manufacturers of some of the cryo equipment and they have
an excellent Patient information section on their website. They also
have video interviews with patients on there.

I hope that helps,


Fran

--- In heartrhythm-AA@yahoogroups.com, "ecoangel77" wrote:
>
> Dear Kathleen,
> Thank you for your message, can you tell me a little more about
> yourself, what age your svt started etc, whatever you are willing to
> share?
> So many questions, when you had the electropysiology study, how did
> they do it, did they need to thread the wires into your heart?
> So what did they mean that they couldn't find a pathway, does that
> mean that you don't have one, does that mean that you don't have
> svt, it all seems very confusing?
> I think that this condition is very confusing, seeing that doctors
> don't know what causes it.
> Cryoblatation is freezing instead of heating the problem area, it is
> meant to be a safer option but not always sucessful. There isn't
> much info on the subject, even the AA don't have anything, which is
> great because I really need to prepare myself before I have it done.
> Has your tiredness started since you have had svt or do you think it
> is due to stress and worry, perhaps adrenal fatigue. I am sure that
> I worried myself to exhaustion, but I don't know for sure. I don't
> know what scares me more sometimes, the tiredness or the svt:)
> I hope to hear from you soon,
> Kind regards,
> Melanie
>
> --- In heartrhythm-AA@yahoogroups.com, "kathleen" wrote:
> >
> > ---Hi Melanie,
> > i have always complained about utter fatigue beyond belief along
> with
> > suffering from arrhythmias.....i dont think people truly understand
> > when your tired like this, actully how awful you feel...i've never
> > felt tiredness like it, but my doctor cant explain it....i have now
> > started working with my condition and dont push myself like i used
> to
> > as it is not worth feeling much more unwell.....i also go for an
> > alternate therapy called "shen" which can raise energy levels and i
> > believe this to be of a great help to me....I understand when you
> say
> > you are worried about your next run of fast heart rate, i to worry
> all
> > the time but i have learned over time to cope better each time...i
> > practice deep breathing to stay calm and this helps a bit.....can i
> > ask what is "cryoblation"? is it the same as radio frequency
> ablation
> > or is it a particular area being ablated?
> > I went into hospital last April with the view to ablation but after
> > having an electrophysiology study done there was no visible, safe
> > pathway that suggested i had SVT (which is what my diagnosis had
> been
> > for years).....However, the girl in the next bed to me had
> successful
> > ablation and honestly looked fine when she come back to the ward
> and
> > said it was ok and not painful...you should get something to calm
> you
> > while they are doing the EP study in the first instance and the
> only
> > thing i felt during that was as if there was something in my throat
> > but it was not sore...I wish you all the best and hope you have a
> > successful ablation and your quality of life increases as a
> > result...please let me know how you get on!
> > Best Wishes,
> > Kathleen
> > In heartrhythm-AA@yahoogroups.com, "ecoangel77" wrote:
> > >
> > > I was wondering whether anyone else suffered with fatigue as
> well as
> > > SVT, not when there is SVT occuring but as well as having the
> > > condition.
> > > My name is Melanie and I had my first episode when I was 19, I
> am now
> > > 29. For the first 7 years, I didn't worry too much because it
> only
> > > occured a few times and would stop. The last 3 episodes were very
> > > unpleasant and involved me going to hospital, the first 2 times
> they
> > > stopped after an hour to a half, the last time they continued
> for 2
> > > hours and I had to be injected to stop them. The last episode
> was in
> > > April and it has really affected me, I worry a lot about a repeat
> > > episode, which led to sleep problems, but this is improving.
> > > I am considering and have been booked in for a cryoblation, has
> anyone
> > > had ablation on this site?, I am very nervous but I thought it
> would
> > > be the safest option as the affected area is so close to the AV
> node.
> > > If any of this sounds familiar to you please get in contact.
> > >
> >
>