Dear Kathleen,
Thank you for your message, can you tell me a little more about
yourself, what age your svt started etc, whatever you are willing to
share?
So many questions, when you had the electropysiology study, how did
they do it, did they need to thread the wires into your heart?
So what did they mean that they couldn't find a pathway, does that
mean that you don't have one, does that mean that you don't have
svt, it all seems very confusing?
I think that this condition is very confusing, seeing that doctors
don't know what causes it.
Cryoblatation is freezing instead of heating the problem area, it is
meant to be a safer option but not always sucessful. There isn't
much info on the subject, even the AA don't have anything, which is
great because I really need to prepare myself before I have it done.
Has your tiredness started since you have had svt or do you think it
is due to stress and worry, perhaps adrenal fatigue. I am sure that
I worried myself to exhaustion, but I don't know for sure. I don't
know what scares me more sometimes, the tiredness or the svt:)
I hope to hear from you soon,
Kind regards,
Melanie

--- In heartrhythm-AA@yahoogroups.com, "kathleen" wrote:
>
> ---Hi Melanie,
> i have always complained about utter fatigue beyond belief along
with
> suffering from arrhythmias.....i dont think people truly understand
> when your tired like this, actully how awful you feel...i've never
> felt tiredness like it, but my doctor cant explain it....i have now
> started working with my condition and dont push myself like i used
to
> as it is not worth feeling much more unwell.....i also go for an
> alternate therapy called "shen" which can raise energy levels and i
> believe this to be of a great help to me....I understand when you
say
> you are worried about your next run of fast heart rate, i to worry
all
> the time but i have learned over time to cope better each time...i
> practice deep breathing to stay calm and this helps a bit.....can i
> ask what is "cryoblation"? is it the same as radio frequency
ablation
> or is it a particular area being ablated?
> I went into hospital last April with the view to ablation but after
> having an electrophysiology study done there was no visible, safe
> pathway that suggested i had SVT (which is what my diagnosis had
been
> for years).....However, the girl in the next bed to me had
successful
> ablation and honestly looked fine when she come back to the ward
and
> said it was ok and not painful...you should get something to calm
you
> while they are doing the EP study in the first instance and the
only
> thing i felt during that was as if there was something in my throat
> but it was not sore...I wish you all the best and hope you have a
> successful ablation and your quality of life increases as a
> result...please let me know how you get on!
> Best Wishes,
> Kathleen
> In heartrhythm-AA@yahoogroups.com, "ecoangel77" wrote:
> >
> > I was wondering whether anyone else suffered with fatigue as
well as
> > SVT, not when there is SVT occuring but as well as having the
> > condition.
> > My name is Melanie and I had my first episode when I was 19, I
am now
> > 29. For the first 7 years, I didn't worry too much because it
only
> > occured a few times and would stop. The last 3 episodes were very
> > unpleasant and involved me going to hospital, the first 2 times
they
> > stopped after an hour to a half, the last time they continued
for 2
> > hours and I had to be injected to stop them. The last episode
was in
> > April and it has really affected me, I worry a lot about a repeat
> > episode, which led to sleep problems, but this is improving.
> > I am considering and have been booked in for a cryoblation, has
anyone
> > had ablation on this site?, I am very nervous but I thought it
would
> > be the safest option as the affected area is so close to the AV
node.
> > If any of this sounds familiar to you please get in contact.
> >
>