I was treated in August 2008 for HCL. By the end of the year, my white cell count was above 4,000. Yesterday (3/11/09), my cell count was in the 3,000...
Perhaps it was there before but I never noticed, but after HCL, I have a delay in my brain wiring. ie. I was in a parking lot getting out of my car and some...
Hi I live in New York and have a great team of Doctors and they are experts on HCL They saved my life in July 2005 Like most people who get HCL I had no idea...
Hello everyone, I hope the holidays are treating you well. I am writing on behalf of my mom, who has Hairy Cell and has been treated twice now with Cladribine....
Hi HCL Survivers Been in remissions seven years, interluken receptor tests, indicate my hairy cells are gathering strength, 4K, at last test, white blood cell...
Hi, my name is Peg and I am 43 years old. I was diagnosed last year Dec.8, 2006. I spent 20 days in the hospital for my chemo, pancyopenia, and double...
I'm coming up on my 3rd round of chemo it seems. After 5 years my counts are dropping slowly. I came back to this group and found only a few posts in one...
It has been two years now Hard to believe I am living a normal life I watch what I eat rest limit my alchol intake I have only had the flu once and it only...
We have a cancer bowl a thon on June 16 07 here on Yonsan Garrison Seoul Korea We are putting together a cancer survivior walk and continue monthly cancer...
Hi Diane, Could you maybe have the flu? Hairy cell Leukemia is a very slow cancer, doesn't usually come that fast. What kind of treatment did you get for your...
If the hcl slow returns every two yrs(after 2cda for me) or if rituxan results in a longer remission(4 yrs on my first course), mywbc would start dropping...
When I was diagnosed I had one third of the blood in my body and my body was shutting down Within 2 hours hematomas formed on my inner thighs I spent 53...
Dear Chris, The side effects from 2 CDA are negligible in comparison to other chemo treatments. The success rate is very high. I had chemo 3 years ago and did ...
2CDA, also called Leustatin or Cladribine, can be given several different ways, shots or IV and other than feeling weak for a few days or few weaks, that was...
My father is suffering from Hairy Cell Leukemia. At this point he is very weak.He has chosen not to do common treatments such as chemotherapy, because of side...
Hello, Has anyone experience both general(Valum, demarol, etc.) Anesthesia or local Anesthesia from a bone marrow biopsy? I have general Anesthesia before and...
Hello Joseph My name is Dianne and I also live in So. Cal. My md not nothing for me in terms of any support groups other than existing groups - mostly breast...
Thank you for letting me join your group. I am afraid I will not be online much untill I get broadband connected, which was promised November 12th. I am 40...
Hi Peter, Thank you for the good wishes and the same from me to all of you. Happy New Year. How are things going with you? Jane in Canada [Non-text portions of...
Peter, I was first diagnosed 10 years ago.. I have been in remission until recently, but the progression is very slow. The hairy cells were seen over 1 year ...
I've placed this article's link at the bottom of this message. ... "According to a recent article published in The Lancet, a marker identified by gene...
hey all, i was one of the only female patients to be diagnosed with hcl in 2001. i had one week of treatments. it took me almost 1 year to get in remission....
Just a short note to wish you all well, Ray has been one year now since treatment with CDA and is going well. I still keep up with all of your messages and...
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