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hairycellleukemiainfosharing · hairy cell leukemia info sharing - share experience as a patient/health providr/resea
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My esperience with being tired, also the flu shot helps with fewer   Message List  
Reply Message #387 of 444 |
If the hcl slow returns every two yrs(after 2cda for me) or if
rituxan results in a longer remission(4 yrs on my first course),
mywbc would start dropping along with platelets and Hemegobin. I
felt tired most of the time when my hemogobin started dropping. Bl
22 at Nat Institute of Health might be an option also, sometimes
antibodies keep it from working, though i have heard you can get
after a course of 2cda which represses the antibodies and allows the
bl 22 to work. I was diagnosed about 1991 at 40, now 55, male, and
only worry about it when I get treated, blood cked every 3 to 6
months, my Dr was nice enough to let me decide when I wanted to see
him again and still get the periodic blood cks, as I felt just the
handshake and hands on spleen ck was reduntant since the blood cks
seem to be the tell all!

Sound like you have an excellent diet and exercise program! Good
luck!
----- Original Message -----
From: Diane Lindsey
To: Joseph Cancemi
Sent: Monday, May 07, 2007 3:15 AM
Subject: Re:tired


Hello Thankyou for your Email I walk four times a week and alternate
with weights I am 49 years old I take vitaims limit my alchol to
one drink every once in a while Sleep 8 hours a day and do protien
shakes for a snack eat plenty of fruits and vegatables So I guess i
will have my blood tested to see whats up

Joseph Cancemi <JCANCEMI@...> wrote:
I try to walk some every day to build my stamina up,even if I have to
go inside a big department store to walk, it seems to help, wks the
big muscles in the legs, the heart and lungs. Also stretching my
hamstrings daily keeps my back from acting up, orange juice daily to
prevent cramps, wear a hood if outside in any type of cool wind,
chicken soup if sniffles or allergies act up, keep some vicodin
around for bad sore throats, my tips for feeling well after the hairy
cell started working on me. I also try to eat healthier, gave up most
alchohol, one drink every so often, stay out of cigarette smoke(had
to give up karaoke) so there are some benefits to getting a slow
chronic disease

This link goes to a very active hcl support group:

http://www.network54.com/Forum/263810/





Mon May 7, 2007 11:16 am

jcjr7
Online Now Online Now

Message #387 of 444 |
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If the hcl slow returns every two yrs(after 2cda for me) or if rituxan results in a longer remission(4 yrs on my first course), mywbc would start dropping...
jcjr7
Online Now
May 7, 2007
11:18 am

Hi..I am interested in speaking with you Joseph (jcjr7)...I was diagnosed at age 37...My name is Gary Pennacchio...please advise if there is an email that I...
gary pennacchio
gpmesaaz
Offline Send Email
May 7, 2007
7:27 pm

I am only 16 months cancer free i was diagnoses at 49 and almost died from it by the time I was diagnosed I had one third of the blood in my body and...
Diane Lindsey
deedhl
Offline Send Email
May 8, 2007
12:29 am

I am 16 months cancer free and have done really good so far juat really tired lately jcjr7 <no_reply@yahoogroups.com> wrote: If the hcl slow returns...
Diane Lindsey
deedhl
Offline Send Email
May 8, 2007
12:24 am

Thankyou so much for your info It is nice to talk to people going through or have been through the same thing jcjr7 <no_reply@yahoogroups.com> wrote:...
Diane Lindsey
deedhl
Offline Send Email
May 8, 2007
12:32 am
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