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goodpasturesyndrome · Goodpasture's Syndrome Support Group

Group Information

  • Members: 11
  • Category: Support
  • Founded: Dec 23, 2006
  • Language: English
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Description

In the fall of 2006 our daughter contracted a rare disease called Goodpasture's Syndrome. I tried to find a support group on-line, but couldn't find one. I decided to start this support group for those who have been through it, and those who are going through it, that we may be an encouragement to each other. I have set up a page on my website with more details of what transpired. A link to that page is listed below.

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Re: My story
Hi Jesse Good to hear from you and to read you are trying to make the best of it. For me It is 3 years now I have been diagnosed with GPS.  I had zero
Posted - Tue Dec 20, 2011 10:46 am
belinda vanderpool
bluebird140ahau
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My story
Hello my name is Jesse, I recently was diagnosed with GPS disease 11/12, and was put on life support. The last 8 years have been a battle with my health, at
Posted - Tue Dec 20, 2011 7:34 am
jkidd696969
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Re: My nephew
Thanks so much for letting us know. I will talk to my sister today about that. I am still wondering if this is hereditary or not. I also have a auto immune
Posted - Mon May 4, 2009 3:59 pm
kelly lemon
leandrea67
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Re: My nephew
Dear Aunt Kelly, I am so sorry to hear this about your nephew and so happy you found this group. I reached out to this group as soon as I found it and it has
Posted - Mon May 4, 2009 2:21 am
LaMar Hudson
texaslamar
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My nephew
my nephew Cameron turned 21 April 25Th and the next morning we watched him being air lifted to a larger hospital. He sounds exactly like your symptoms except
Posted - Sun May 3, 2009 7:57 pm
leandrea67
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2008 5 5
2007 2
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