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Re: Digest Number 172   Message List  
Reply | Forward Message #545 of 2097 |
Re: [glutenfreeinwny] Digest Number 172

>What is Acidopholis? I have been
on quite a strict diet but been
having trouble with my stomach with
even rice. I still haven't had a biopsy
taken. I guess I am nervous about having
one. I have real bad balance problems
and don't like to be put out cause I
get vertigo when I lay down to long.
I want my Dr. to find out whats causing
the balance problems first but he
hasn't yet.




Hi,
>
> My daughter, who has Celiac's, sees Dr. Trubish, but as the dr. was out
> on maternity leave, my son went to see her partner, Dr. Wacker. My
> son has had stomach problems since 3rd grade (he's 21 now). (Don't
> get me started on what the pediatricians thought.) Dr. Wacker found
> that he's Selective IGA difficient, which can make any celiac blood
> tests and biopsies "negative". (Indeed, his biopsies - 6 of them,
> came back negative.) Therefore, it is called a "false negative". He
> stayed on the gf diet for about 6 weeks, went to Dr. Cynthia Rudert in
> Atlanta (he's in college there, but comes home to Buffalo to see Dr.
> Wacker). Dr. Rudert is the national "expert" on celiac disease. She
> insisted that mom and dad get screened and immeidately, put my son on
> Acidopholis pills every day w/ a meal. She is also testing him for any
> inflammatory bowel disease, parasites, etc. She is trying to
> determine if, in fact, he is a celiac patient. His Selective IGa
> deficiency makes all his test null and void! We are hoping Dr. Rudert
> can rule out the Celiac. Google Dr. Cynthia Rudert, I loved her -
> she's so empathetic.
>
> Sarah






Tue Oct 25, 2005 12:45 am

jany12002
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Message #545 of 2097 |
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Hi, My daughter, who has Celiac's, sees Dr. Trubish, but as the dr. was out on maternity leave, my son went to see her partner, Dr. Wacker. My son has had ...
Sberardi39@...
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Oct 23, 2005
10:58 pm

... on quite a strict diet but been having trouble with my stomach with even rice. I still haven't had a biopsy taken. I guess I am nervous about having one. I...
janetlf@...
jany12002
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Oct 25, 2005
12:45 am

Hi Janet, You mentioned in a previous message you were still consuming Oats. You might want to avoid them for a while as the info I passed from the Shelley...
Mike Lodico
glutenfree@...
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Oct 25, 2005
11:19 pm

Yes I have been eating oats still Mike I did stop them for about a month but didn't really feel any different,but I am going to take them out of my diet now...
Janet Ford
jany12002
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Oct 26, 2005
5:03 pm
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