does anyone remember the site or aritcle that stated the advisability
of delaying childhood immunizations for celiac children?
i ask because i'm currently embroiled in a custody battle for the
little girl we want to adopt and the birth mother, her lawyer and CPS
are blasting me because I chose to delay Sierra's shots until she
stabelized.
also her current doctor did the blood work and they came back with
very low readings so he was ready to writeo off the celiac diagnosis
as non exisitant. when i told him she had been gluten free for so
long and only had gluten in the 4 days proir to the tests he
said "So?" I told him we needed at least a month before we'll get a
good reading that i will trust.
i'm trying to find a competant pedatric doctor who isn't too far from
medina, that also understands celiac. this pediatrician is good for
general stuff but when he suggested that even if sierra tests
positive for celiac i could "cure" her by reintroducing gluten into
her diet in small amounts as not to over power her sysyem. i freaked.
i sat there and argued for 30 minutes with him that even a pin point
amount could be dangerous for her. he just stared at me like he was
thinking..like yeah another mother who thinks she knows everything.
well excuse me i do know almost everything about what makes sierra
react and if i didn't have to do these stupid tests to prove to the
courts i know what i'm talking about then she would still be totally
gluten free.
i wish they could live for 24 hours with her and see what she goes
through. she is irritable, unhappy has diahreaa , bloating cramps
etc. and she can't concentrate or hold still for any amount of time.
if i hadn't already read reports about food allergies and behavior
i'd swear she had ADD/ADHD or something along those lines.
but we will weather this and get her back on track as soon as the
month is up and maybe back to her old happy "normal" but precosious
self again
sorry to be so long winded but i'm ready to pull my hair out from
dealing with all of the incompetitant fools who think they have the
child's best interest at heart but feel they have to harass me
instead.
jen