I have had all of my daughters vaccines on schedule but I spaced the ones with multiple needles 1 week apart. I also had the rotavirus for gastro. She didn't...
We made sure all our friends and family were very sure that no one in their families were at all sick when they visited. We made sure everyone washed their...
I believe my grandson got his on the normal schedule, but took Motrin in advance of each immunization to minimize fever. Good luck and best wishes! ... From:...
We have gotten all of Sarah Grace's vacinations at the normal schedule. Her specialist has us give her motrin before any vacination and for 48 hours after....
After diagnosis (6.5 months post-crisis), we continued with the killed vaccines on schedule, but postponed the live vaccines until after the risk period (age 3...
Hi Dan, Our son, now 2.5, was also diagnosed at birth and I had the same concerns. His geneticist thought that the threat of the actual illnesses was more of a...
hi all in the past this board has been a great support .im reaching out again because i am lost our story my 17 month old daughter had elevated glutaric adn...
Hi Sunny, I am sorry that you are lost and scared. The only advice I would know to give you is to get a 2nd opinion from another Metabolic specialist or...
hi Shantel, thanks for the email. I hope your daughter is doing well. I'm sorry to hear about the stroke. Did she have a newborn screen done? I know not all...
Hi everybody, I have been reading the archives in this group last night and this morning, and the stories have brought tears to my eyes many times. You are a...
2185
glutaric_acidemia@yah...
May 30, 2011 11:11 am
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the glutaric_acidemia group. File :...
2186
glutaric_acidemia@yah...
May 30, 2011 11:13 am
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the glutaric_acidemia group. File :...
2187
glutaric_acidemia@yah...
Jun 1, 2011 2:24 am
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the glutaric_acidemia group. File :...
2188
glutaric_acidemia@yah...
Jun 1, 2011 3:04 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the glutaric_acidemia group. File : /stem...
Hello my name is Katie. My son Dustyn who is a 11 mo was diagnosed with GA 1 on the Newborn screening Thank God. He has not had a "crisis" yet. We just came...
Hi Katie, I see your cute little one on Facebook and would love to follow how well he does. My grandson, Ayden Hill has GA1 and is amost 8 now! Hard to ...
Seriously stop sending this junk!!! Please !!! To: wperkins@...; jhhuggins@...; jcampbell@...; bkottke@...;...
2210
glutaric_acidemia-own...
Feb 21, 2012 10:27 pm
Apologies to all, I have deactivated this person's posting due to the continued spam problem. Hope everyone is doing well and that the kids are thriving!...
I am guessing this person has a virus, that is sending out the random links. Can someone contact him? I am guessing he doesn't even know he has one. Trish ... ...
Hi, I hope all is well. Destiny is participating in the Great Bike Giveaway, a Facebook Contest from Friendship Circle that is giving away 14 adaptive bikes...
TRACY, WILL VOTE FOR HER. BUT DO U HAVE A VARIETY CLUB THERE? WE HAVE ONE HERE IN ST.LOUIS AND THEY WILL GIVE U A BIKE IF UR CHILD IS UNDER 18 YRS OLD. MY...
Uhm I don't know ... From: Linda Bone Sent: 13 May 2012 05:59:28 GMT To: glutaric_acidemia@yahoogroups.com Subject: Re: [glutaric_acidemia] Hello, please help...
