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glutaric_acidemia · International Organization of Glutaric Acidemia

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  • Members: 99
  • Category: Support
  • Founded: Apr 6, 2004
  • Language: English
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Messages 1436 - 1465 of 2216   Oldest  |  < Older  |  Newer >  |  Newest
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1436 Rob & Paula Schmiedel
schmedlybassman Offline Send Email
Jul 1, 2007
12:51 pm
she was also taken off of it and I have some left over. I thought maybe someone could use it. ... From: "Tracy Jamison" <tjamison16@...> To:...
1437 Arnold Corrina
aspentre Offline Send Email
Jul 1, 2007
7:09 pm
My son uses glutarex 1. Corrina Amarillo, TX ... ____________________________________________________________________________________ Food fight? Enjoy some...
1438 Tracy Jamison
superbusymom3 Offline Send Email
Jul 2, 2007
12:17 am
we have alot left over alos I was just planning on giving it to her genetic doctor to use for other patients or taking it to the ga social in september ... ...
1439 cindy hill
cindync23 Offline Send Email
Jul 2, 2007
12:30 am
My son Ayden was on Glutarex 1 now on Glutarex 2. schmedlybassman <bassman7@...> wrote: Was wondering if anyone uses the formula glutarex 1? ...
1440 cindy hill
cindync23 Offline Send Email
Jul 2, 2007
12:33 am
Hello Tracy, I plan to go to the Social in September also. I will look for you there! Tracy Jamison <tjamison16@...> wrote: we have alot left over alos...
1441 cindy hill
cindync23 Offline Send Email
Jul 2, 2007
12:36 am
I was wondering who was planing to go to the social this year. We could all be on the lookout for one another and get to meet. Cindy Hill, NC Ayden, 3 ~ GA1 ...
1442 Arnold Corrina
aspentre Offline Send Email
Jul 2, 2007
12:41 am
Why the switch to 2 is there a difference? What is the difference? Corrina ... ...
1443 Dena
mygirlskhs Offline Send Email
Jul 2, 2007
1:06 am
We plan on being there. Dena Handy Glen Burnie, MD Sarah, 1 year old this coming Friday, GA1 Kaitlyn, 7 this past friday, unaffected Hope, 4 ... could all be...
1444 Michelle Cram
shellyk1234 Offline Send Email
Jul 2, 2007
3:28 am
Glutarex 2 has 30grams of protein per 100 grams of formula where Glutarex 1 has only 15 grams ... From: Arnold Corrina <aspentre@...> To:...
1445 Jennifer Young
jen_kev_cody Offline Send Email
Jul 2, 2007
5:52 pm
We are in the process of changing to Glutarex 2, but we still are using Glutarex 1 with the 2. Jennifer Cody 21 months, GA-1 Tennessee ... ...
1446 Josh Mayfield
kickbutt162000 Offline Send Email
Jul 2, 2007
7:15 pm
i never got my invite Thanks your GA1 friend Josh My GA1 site better then ever Website's my GA1 site my GA1 myspace is now open my GA1 group My email addresses...
1447 cindy hill
cindync23 Offline Send Email
Jul 3, 2007
12:30 pm
Glutarex 2 is when they are 2 and over. Ayden started Glutarex 2 at 2 1/2 years old. But now we are having trouble with him not drinking it because it tastes...
1448 Arnold Corrina
aspentre Offline Send Email
Jul 3, 2007
4:03 pm
My son is on Glutarex 1 and he is 7 years old. Corrina ... ____________________________________________________________________________________ Finding...
1449 Dena
mygirlskhs Offline Send Email
Jul 8, 2007
2:09 am
Has anyone gotten a medical alert bracelet for your child? I spoke with Sarah's dr about it and she thought it was a great idea. Do you know of any wording...
1450 cindy hill
cindync23 Offline Send Email
Jul 8, 2007
2:00 pm
Dena, I can't believe that I have never thought of this for my son Ayden. It's a very good idea and I will speak to his doctors about it. Cindy Hill Ayden, 3...
1451 Kathy Stagni
oaanews Offline Send Email
Jul 9, 2007
5:57 pm
We have had a medic alert bracelet for my daughter ever since was three years old since she was taking the bus to early childhood special ed classes. Her ...
1452 Kathy Stagni
oaanews Offline Send Email
Jul 9, 2007
6:03 pm
FDA Approves Carnitor® SF (Levocarnitine) Sugar-Free Oral Solution For Patients With Carnitine Deficiency GAITHERSBURG, MD, June 22, 2007 – The Food and...
1453 sangiovese Offline Send Email Jul 12, 2007
3:42 am
... could all be on the lookout for one another and get to meet. ... Hill, NC ... 3 ~ GA1 ... 11 months~ una ... i have reserved a group of rooms for GA...
1454 Tracy Jamison
superbusymom3 Offline Send Email
Jul 12, 2007
6:49 pm
I had a question about the rooms at eden inn i called but they said there was only one room and that the rate was 129 a night is there any other hotels near...
1455 sangiovese Offline Send Email Jul 15, 2007
9:56 pm
... there ... other ... my mistake here are hte other confirmation # to use for available rooms when calling the Eden.... # 349293/349294/349296/ try one of ...
1456 sangiovese Offline Send Email Jul 15, 2007
10:00 pm
To anyone having trouble finding a room for that weekend there are still 3 rooms left under my name cay welch with the following confirmation #...
1457 sangiovese Offline Send Email Jul 15, 2007
10:12 pm
On Sept 21 in Latrobe, PA at the Arnold Palmer Country Club we will be hosting our 5th golf event. We have never had a corporate sponsor and incur approx....
1458 Josh Mayfield
kickbutt162000 Offline Send Email
Jul 15, 2007
10:48 pm
are you paying for the room Cay sangiovese <cswelch@...> wrote: To anyone having trouble finding a room for that weekend there are still 3...
1459 Tracy Jamison
superbusymom3 Offline Send Email
Jul 19, 2007
12:47 am
I will try to call tomorrow to see if we are able to get a room are there any other hotels near by that are any cheaper? also we can bring pop and plates or...
1460 sangiovese Offline Send Email Jul 19, 2007
2:26 pm
... I have not paid for rooms in the past but if finances wil keep you from coming I would offer you 50$ towards the expenses. you can reach me at 724-459-0179...
1461 Wanda Shelton
joshcrazy04 Offline Send Email
Jul 27, 2007
11:09 am
I just wanted to update everyone on the sudden turn of events with us. Shelton was at the sitters house and around 8:30 she called to tell me he just didnt act...
1462 Dena
mygirlskhs Offline Send Email
Jul 27, 2007
2:22 pm
Wanda, We will keep Shelton in our prayers. May the Lord bless and keep you during this time of trial. Dena Sarah GA1 age 1, Kaitlyn age 7 and Hope age 4...
1463 WANDA
leas.granma Offline Send Email
Jul 27, 2007
3:37 pm
Wanda I WILL KEEP Shelton in my prayers .This is a scarry time for you ,and I'll also keep you in my prayers. Wanda G. in N.C. ... us. Shelton was at the...
1464 Vicki
vickinc Offline Send Email
Jul 27, 2007
7:53 pm
Our hearts, thoughts, and prayers are with Shelton and your family. Vicki Hacker, North Carolina Grandmother to Ayden Hill dab now almost 4 and Naomi Hill...
1465 carol gallegos
carol_810542000 Offline Send Email
Jul 28, 2007
2:17 am
Oh God, I am praying for you...I hope everything turns out okay..please keep us posted... Carol Nevaeh's Grandmother To: glutaric_acidemia@...:...
Messages 1436 - 1465 of 2216   Oldest  |  < Older  |  Newer >  |  Newest
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