plz go to my site at http://www.angelfire.com/al3/jkmstory/openpage.html and go to Working on update's for 2007 Thank's and feel free to seen me idea's...
There hasn't been a whole lot of activity on here lately. I have started reading through some of my older emails and was reading some I got from Carson's mom....
Hi Wanda the other little boy is my grandson Kobe,he has a sister aliyah who just got out of the hospital ,she had an ear infection and a uti.She is in pre k...
I am also wondering if someone would like to write an article for the next OAA newsletter on the GA social? Maybe include some pictures? Please email me back...
Hi kathy, the shootings did not effect any ga1 familys directly. Dr morton has been heavily involved. Please pray for the 5 still in the hospital, it is...
Hi kathy, the shootings did not effect any ga1 familys directly. Dr morton has been heavily involved. Please pray for the 5 still in the hospital, it is...
Hello, I would like to join your group. My daughter Eva is just about 6 months old and was diagnosed by Newborn Screening in Sydney Australia. So far, all is...
Hi there, This board has been pretty quiet lately - so I am sure you will get more replies but it may take a little while. My name is Wanda. I have 5 kids. My...
go here its my site new people Thanks your GA1 friend Josh http://www.angelfire.com/al3/jkmstory/openpage.html ... From: yakoodle <yakoodle@...> To:...
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Posey, Lacy
lposey@...
Oct 9, 2006 4:03 pm
Hi Rebecca & Eva! My name is Lacy and my husband is Shannon. We have 2 children--Cody (will be 4 in December-unaffected) and Cheyenne (just turned 1-GA1). ...
Hello Rebecca, My name is Vicki, my grandson is Ayden Hill, He was diagnosed at birth with GA1. He hasnt had a crisis but he does have slight brain damage...
my daughter was diagnosed at 6 months before any crisis but then at 2 1/2 she had a crisis (seizures0 that left her unable to do much Dr. Morton said it was...
they need to do a test to see if the baby has ga it sounds like it could but you never know they can be similar that is why they need to test the baby before...
Hi Rebecca, Welcome to our group! I'm glad that your daughter is doing so well. She has a beautiful name! I have met a few GA1 children that have been...
Hello Vicki! Good to hear from a loving grandmother! Grandparents are the best! I don't know what I would do without my and my husband's parents helping us...
Hi Lacy, It's so good to hear that Cheyenne is doing so well! Heather is enjoying 3rd grade and just started on Ritalin which is helping her talk more clear ...
1067
Posey, Lacy
lposey@...
Oct 12, 2006 8:53 pm
We had plans to come this year...hotel reserved and everything, then my husband lost his job, so we didn't make it. Be we are DEFINITELY coming next year! I...
Thank you all for your kind replies. I am happy to know of the support that this group offers. You all sound so kind. I read as well that about 70% have the...
I didn't know you were that close to coming. I hope your husband found a new job. Heather doesn't like school very much. She likes recess! But, she's doing...
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Posey, Lacy
lposey@...
Oct 13, 2006 2:10 pm
Shantel, He did find a job after about a month...not too bad. The biggest issue we have with Cody in school is getting him to wear pants instead of shorts...
Hi Rebecca -- My child doesn't have GA1, but I'm the director of the Organic Acidemia Association - a parent support group for about 15 different organic acid...
Hi, My name is Jennifer Young, and my son Cody was diagnosed at birth, September 22, 2005. He has had no crisis thanks to God. We have had early intervention...
Hello and welcome to all the new members, So nice to hear from new families and other youngsters. I have been catching up on my emails quietly this evening,...
Hi, My name is Michelle Cram and my son Ethan was diagnosed in August of last year at the age of 1 and a half years old.He had no crisis but he did have...
Lacy, Thank you for the encouragement. That's funny about Cody wanting to wear shorts. Heather is so strange about her clothing. She is getting better, but...
Hi Fatma, Heather is taking the Ritalin. The specialist explained it kind of like this. He said that if a child has minor injury, the Ritalin can be of help....
Michelle, Hi. Your story is pretty typical of all the "run around" we often get trying to get answers before diagnosis. I'm so glad that your neurologist new...
Shantel, Did you know that Heather had GA-1 at the time? Just curious. Was there any warning of what was about to take place. How is she doing now? Jennifer ...
Shantel, Did you know that Heather had GA-1 at the time? Just curious. Was there any warning of what was about to take place. How is she doing now? Jennifer ...
