Group Information- Members: 123
- Category: Support
- Founded: Apr 6, 2004
- Language: English
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Description
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The International Organization of Glutaric Acidemia (IOGA) is an international, voluntary, and non-profit organization dedicated to promoting early detection, preventing neurological damage, and assisting in the treatment and rehabilitation of those affected by Glutaric Aciduria Type I (GA1) and other neurological diseases. Established in 1995 and consisting of approximately 100 members, IOGA engages in patient advocacy and support, offers family networking services, promotes research, offers medical referrals, and engages in patient education. Educational materials include medical journal article reprints, brochures, a web site, and a regular newsletter.
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Re: Homoarginine
Here is the study done with mice, http://brain.oxfordjournals.org/cgi/content/abstract/129/4/899. Dr. Zinnati did a presentation at the OAA conference in
Posted - Thu Nov 5, 2009 10:55 pm
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Dena H
mygirlskhs
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Homoarginine
Hi, I have been talking to my Dr and reading about novel treatments for GA1 and I hear alot about homoarginine. Has anyone heard anything about the possible
Posted - Thu Nov 5, 2009 5:38 am
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yakoodle
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Re: New diagnosis
Hello Sara, My 12 year old, who I adopted aged 18 months has GA1. He was just diagnosed when he came to me so I remember some of what you will be going through
Posted - Thu Oct 15, 2009 12:04 pm
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janie6813
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Re: GA1 Kiddo in News
Tracy, Lily tried one out before, and some things worked great and others not so much. However, with the kiddos it has worked for - it's been excellent!
Posted - Thu Oct 15, 2009 4:02 am
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Sarah Kordis
sarah.kordis
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Re: GA1 Kiddo in News
Corrina, That's awesome, great work! Thank you for sharing your journey! Our family, including another family I know, are applying to the foundation
Posted - Thu Oct 15, 2009 3:59 am
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Sarah Kordis
sarah.kordis
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Group Email Addresses
| Related Link: |
http://www.glutaricacidemia.org |
| Post message: |
glutaric_acidemia@yahoogroups.com |
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glutaric_acidemia-owner@yahoogroups.com |
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