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glutaric_acidemia · International Organization of Glutaric Acidemia

Group Information

  • Members: 141
  • Category: Support
  • Founded: Apr 6, 2004
  • Language: English
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Description

The International Organization of Glutaric Acidemia (IOGA) is an international, voluntary, and non-profit organization dedicated to promoting early detection, preventing neurological damage, and assisting in the treatment and rehabilitation of those affected by Glutaric Aciduria Type I (GA1) and other neurological diseases. Established in 1995 and consisting of approximately 100 members, IOGA engages in patient advocacy and support, offers family networking services, promotes research, offers medical referrals, and engages in patient education. Educational materials include medical journal article reprints, brochures, a web site, and a regular newsletter.

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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 2 6
2011 3 1 5 1 2 1 9
2010 7 9 1 10 2 4 7 14 6
2009 24 74 12 18 10 9 17 1 15 9 4 6
2008 2 43 4 1 53 52 5 15 27 10 18 6
2007 45 109 47 71 17 29 48 34 51 36 44 35
2006 23 16 49 59 19 81 17 13 49 42 23 2
2005 1 37 41 74 85 87 34 46 64 111 7 28
2004 24 11 32 5 6 18 3 9 1
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