Search the web
Sign In
New User? Sign Up
glutaric_acidemia · International Organization of Glutaric Acidemia
  • Members Only
  • Post
  • Files
  • Photos
  • Groups Labs (Beta)

Group Information

  • Members: 124
  • Category: Support
  • Founded: Apr 6, 2004
  • Language: English
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Hear how Yahoo! Groups has changed the lives of others. Take me there.

Best of Y! Groups

   Check them out and nominate your group.
Visit the Groups blog for the latest Yahoo! Groups information

Home

  

Activity within 7 days:

2 New Messages - New Questions

Description

The International Organization of Glutaric Acidemia (IOGA) is an international, voluntary, and non-profit organization dedicated to promoting early detection, preventing neurological damage, and assisting in the treatment and rehabilitation of those affected by Glutaric Aciduria Type I (GA1) and other neurological diseases. Established in 1995 and consisting of approximately 100 members, IOGA engages in patient advocacy and support, offers family networking services, promotes research, offers medical referrals, and engages in patient education. Educational materials include medical journal article reprints, brochures, a web site, and a regular newsletter.

Most Recent Messages

  (View All)
(Group by Topic)
Search:
Advanced
    Start Topic
Intestinal problems resolved for my son....
Hello to all parents of GA1. This is a very brief post with information that I've been inspired to share. My son Simon is GA1 with severe brain injury at 6
Posted - Mon Nov 16, 2009 3:30 pm
 chaca.rm
Offline Offline
Send Email Send Email
migraine and GA 1?
I think I might have posted here once. My son has GA 1 but is mildly affected at best. He has a few balance issues but otherwise is totally living a normal
Posted - Mon Nov 16, 2009 2:30 am
 Trish Hellstern
kcjdmom
Offline Offline
Send Email Send Email
Re: Homoarginine
Here is the study done with mice, http://brain.oxfordjournals.org/cgi/content/abstract/129/4/899. Dr. Zinnati did a presentation at the OAA conference in
Posted - Thu Nov 5, 2009 10:55 pm
 Dena H
mygirlskhs
Offline Offline
Send Email Send Email
Homoarginine
Hi, I have been talking to my Dr and reading about novel treatments for GA1 and I hear alot about homoarginine. Has anyone heard anything about the possible
Posted - Thu Nov 5, 2009 5:38 am
 yakoodle
Offline Offline
Send Email Send Email
Re: New diagnosis
Hello Sara, My 12 year old, who I adopted aged 18 months has GA1. He was just diagnosed when he came to me so I remember some of what you will be going through
Posted - Thu Oct 15, 2009 12:04 pm
 janie6813
Offline Offline
Send Email Send Email
Add glutaric_acidemia to your personalized My Yahoo! page Add to My Yahoo! XML What's This?

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 24 74 12 18 10 9 17 1 15 9 4
2008 2 43 4 1 53 52 5 15 27 10 18 6
2007 45 109 47 71 17 29 48 34 51 36 44 35
2006 23 16 49 59 19 81 17 13 49 42 23 2
2005 1 37 41 74 85 87 34 46 64 111 7 28
2004 24 11 32 5 6 18 3 9 1
What is Yahoo! Answers?

Yahoo! Answers, a new Yahoo! community, is a question and answer exchange where the world gathers to share what they know...and make each other's day. People can ask questions on any topic, and help others out by answering their questions.

Hide this tip
What is Yahoo! Answers?

Yahoo! Answers, a new Yahoo! community, is a question and answer exchange where the world gathers to share what they know...and make each other's day. People can ask questions on any topic, and help others out by answering their questions.

Hide this tip

Questions in Health & Beauty > Health & Well-Being

  • Questions are currently unavailable.

Want to help answer other questions? Go to Yahoo! Answers

Group Email Addresses

Related Link: http://www.glutaricacidemia.org
Post message: glutaric_acidemia@yahoogroups.com
Subscribe: glutaric_acidemia-subscribe@yahoogroups.com
Unsubscribe: glutaric_acidemia-unsubscribe@yahoogroups.com
List owner: glutaric_acidemia-owner@yahoogroups.com
Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help