26 year old male here and i have focal onset epilepsy sense i was 3 months old. medications are controlling it some extent however i am disabled due to the...
I just found this group and hope I can talk with some people who 1) believe that Irlen Syndrome exists and 2)can help me with issues about my granddaughter,...
Hi Chris, Welcome. I am sorry to hear you have focal onset epilepsy since you were 3 months old. Do your doctors know what causes it? I don't suffer from...
Hi Diana, I am glad you found us as I hope we can answer some of your questions. I am 100% a believer in Helen Irlen Syndrome (AKA: Scotopic Sensitivity...
Hello everyone, I found out I had Irlens three years ago when whilst doing my university coursework I developed a severe pain behind my eyes which painkillers...
Did you happen to take an antibiotic recently, before the symptoms appeared? Larissa ... problems for 3 months now, with no relief and no other diagnosis. My ...
Christina this is going to sound like a strange question, but do have problems with things like hands and feet going numb (like they are asleep) when your...
Sarah, I have problems like you describe - numbness, tingling, prickling sensations besides other neuro symptoms. I was going to elaborate, but my baby just...
Hi Larissa- Why do you ask? I had a Hysterectomy on 11/28/05 my symptoms started on 2/9/06 I had just my uterus removed, ovaries are intact.I am not sure if I...
Sarah- I have not been having any numbness or tingling as you have mentioned.Mine has mostly been Dry Eye, Photo Phobia and Chronic Migraines and my test...
Thanks for the tip- What kind of color filtered glasses are you getting? Are they for Photophobia? Sensitivity to Flourescent light and computer screens? Are...
Hello all, I was just reading about the software that changes the colour of the screen. I'll check that out. I use textic toolbar (www.textic.com) at the...
I've been using textic toolbar (www.textic.com) which is similar. It changes the colour of the background, text, font size etc.. It works on the internet and...
Hi Tim- Hey, you have some great ideas here. Where did you get the Irlen glasses and the Sporty Adidas from? Also, where did you buy the anti-glare filter film...
Hi Christina, My Irlen lenses were prescribed by James Billet at Irlen Central England (www.irlencentralengland.co.uk). I'm not sure which country you live in...
Hi Tim- Thanks for the info. I live in the states.I will have to find a distributor over here. I will contact Irlen directly. Again-Thank you! Christina ...
Hi Larissa- Thank you for responding. Since I emailed last I talked with my GYN Doc who did the Hysterectomy and he said the only time I was on an antibiotic...
Hi, I just found this group, and I'm hoping to get some information/help from it. My best friend and all of her daughters have it, and she thinks I have it,...
Hi, Christina, If you think back to just after your surgery, do you feel that you were already having some of the symptoms of forgetfulness or disorientation,...
hello i was wondering how severe irlen syndrome can be . I have extreme light sensitivity , balance problems and severe migrains any kind of light makes me...
Hello Natty, I have Irlens, migraines which have made me be sick and get a pain behind/above my right eye if I read but if I put a patch on it I get the pain...
Dear Members, The more stories I hear, including my own, the more I wonder how many of you or the people you are writing about, like your children or friends'...
Hi, I just found this group, and I'm hoping to get some information/help from it. My best friend and all of her daughters have it, and she thinks I have it,...
Brain studies have shown that SSS sufferers use portions of their brains that would otherwise be dedicated to decoding sound to help unscramble visual ...
Hi, as a newcomer myself, I would first look at www.irlen.com. Read through everything on the website. You'll probably find a lot of your symptoms on the...
Wow, this makes total sense to me. My husband always wonders why I don't comprehend as much as he when we sit in the same class and see and hear the same...
The benefits from eating healthy are endless. And, according to Dr. Nicholas Perricone, who was a guest on the Oprah Winfrey show, mentioned that some foods...
Hi Larissa- I was given an antiobiotic called "Ances" through IV at time of surgery, No symptoms that I am having now were not happening at that time. I had...
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