Hi Terri,
I am sorry to hear of Janet's brush with upper respitory and
infections. That is too bad. I am glad that it was not anything
serious and I sure can understand your worries and concerns after
the harrowing surgery. I am also glad to hear that the urge to look
at the light has stoped and that it continues to stop.
You know I was thinking about Janet this past week and I remembered
one time I was in UCLA and after having a seizure looking out of the
window towards the light. I remember you sharing Janet's compulsion
to look at the light and then I relayed to you that I did not have
that problem. But, I did have a compulsion somehow to want to look
at the light...of course I would be out of it and why I would do
this is a mystery to me...I remember after having a seizure in UCLA
and when a nurse was speaking to me...and when I would not answer (I
was being filmed and they had speakers to my room) over the speaker
they said "this is what she does after she has..."? I was lucky to
remember this as I was coming out of a my seizure and I am able to
remember it...I remember it because I wondered what was the big deal
about me doing this?
I guess they knew more than I did...it seems that it is something
that people who suffer from light sensitivity seizures may do. Back
then I did not know my seizures directly relayed to my light
sensitivity. Interesting. I will have to pay attention when I have
another one and see if I remember if I look at the light afterwards.
I make no promises as it is hard to remember things when I am having
a seizure...if it is waking I may have a better chance. This can
explain to me why I get so goofed up when I am on the computer and
staying on after I have had a small seizure. I see that the best
thing for me to do is get away from the screen ASAP to allow my
system to calm back down. I learn so much from this group. Thank
you and plese don't stop sharing with me about Janet.
Lu