Hi Lu,

I'm wowing over the chiropractor link. I started seeing a chiro about when my
symptoms started. I haven't been diagnosed as SSS but I can't think of what
else my trouble focusing might be. Every eye doctor and neurologist I've been
to says I'm fine. Wow, now I'm really regretting going. They adjust my neck
even though I'm really there for my lower back. Ouch - did I bring this on
myself by going to the chiro. Wow, I hadn't thought of that. You've got me
wondering now....

Thanks,
Carrie

amluhu <no_reply@yahoogroups.com> wrote:


Hello Tesa,

Don't feel bad about your son struggling with SSS. There is not enough
public education to reach everyone to know and understand SSS. I all
to well understand how bad SSS can be where your son can only see one
word per page. It is quite understandable that reading for him places
a big strain on him.

Yesterday, when I went shopping I could not read. I could see the
merchandise but I could not read. I discovered over a year ago that my
pattern in SSS drastically changed when an incompetent chiropractor
re-injured my neck for an auto injury in 1991. It is baffling how this
could have had an affect. I guess Helen Irlen will one day discover it.

I am ecstatic to hear that the other school district discovered that
he had SSS. Wow! Your son seems to be in the right place now.
Wonderful! I am always happy to hear that the school district gets
involved with SSS for the sake of their students. Education is the
world to each person in this country. What a shame it can be for a
child to be defeated with SSS. Don't feel bad as a mother, and don't
look back at what ifs, could haves, and shoulds. Your son does not
need his mother to feel guilty and bad. He needs his mother's strength
now. 13 years old is plenty of time for him to get through the rest of
his years. To learn how to deal with SSS. This will allow him to
prepare for what he wants to do with his life when he graduates. Don't
feel bad. Focus on the future now.

It is a shame how children are "dog" labeled and not helped to
overcome their learning disabilities, no matter at what level it comes
from. Each child is important and disserves help when they need it.
Sometimes a parent is the only who can. I know it could become a
handful, but be prepare for what to do when you feel bad by doing
something that will cancel that feeling that will only waste your
energies.

"Purple" is one of the filters I use to help me with my light
sensitivity. I now need different color filter glasses for different
tasks. I on my own have pretty much figured it out, as there are no
eye doctors who understand on SSS. I have a prescription for reading
glasses I will fill out and have the colored filtered. I have to
remove my glasses for reading, as I can get sick?

Yesterday, I got in a bind at Wal-Mart as I could not read with my
current color filter glasses, (different color filter glasses for
different tasks) and had to take them off (from wearing them for
outside and riding in a car due to the lights). I know I need some
color filter glasses to help me read, as I could not make out AAA
batteries from AA so I ended up buying the wrong ones. One of the
employees there tried to help me locate the display, but I could not
read to see it. She kept saying "its right there" I said "where?"
"Right there" well this went on for about two minutes. It was right in
front of me! That is SSS.

I sheepishly looked at her. She seemed amused, smiling at me as I must
have appeared silly to her, when in fact I really could not read to
save my life if I had to. I mean it is just like being legally
"blind"! I just went about my life again. I have gotten used to ignore
situations like this, and not to justify my SSS because it is not well
known. I pick the people I do explain carefully in order to protect
myself...

I have dark ones and light ones that are fine. A previous lighter
color filter helps me to see. Sometimes you just have to listen very
hard to the symptoms, look for patterns of efficiency and when light
defeats you. I will see Helen Irlen when I find myself in a bind with
my SSS and I need her help. I will go and see her if I need to. I
figured my SSS out pretty good.

Sometimes I have to be patient, this last time that I needed to figure
out my color filter glasses took me over a year. Thank G-d that my
previous colors worked for me even if limited, but they were good
enough. The trick is to keep at it. I can tolerate light more but I am
not out of the woods yet as I need to wear my color filter glasses.
They are my helpers for me to be able to see, and live my life as
normal as possible.

Tesa, I am busy with my writing for a while. You are welcome to
contact me here at this website.

Lu



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