Charles,
I was diagnosed only a few weeks ago and don't know the answers to your
questions. This is a life changing experience for me at the age of 34. Feel
free to write me about anything else you would like to talk about. Tell us more
about your story.
Here is what I have assessed so far but you should keep in mind that I am only a
few weeks into this and there are many more qualified people who are Irlen
representatives who can give you better information. I don't know if what I
know is correct yet, but here is what it seems to me so far.
I have spoked to a few eye doctors, most a very interested and accepting of the
condition and only one was somewhat cynical, however, that doctor was using non
Irlen people to diagnose. He was having trouble telling the difference between
ADD and Irlen, he kept saying that people who cannot "focus" are ADD. He said he
has one person every five years who has a "life changing" experience with Irlen
and one per year who feels ripped off. It appears to me that there are some non
qualified people out there diagnosing and treating which in turn confuses the
doctors. I heard that the eye doctors had retracted the original statements
saying the whole thing was bogus.
I have not heard much about medical doctors. There is a well respected
neurologist at Kansas University Medical Center named Dr. J. Luwine who claims
he can see the abnormal activity in the brain of Scotopic people using brain
imaging and supposingly treats Irlen.
When I have tried to read the research papers from different scientists and
medical professionals it appears to me that they make some ridiculous mistakes
in their testing. For instance, they use whatever plastic sheets they can buy
from an office supply store, they don't use all the colors available for testing
or sometimes they only use one color, they just throw the sheets out and let
kids pick a color "they like" rather than the one or combination of colors that
allows distortions to disappear then expect that color to also be the one the
read better with, and NONE of the bad reports use the actual lenses. None of
the refuting research papers I read did an actual Irlen screening and then used
the actual lenses. All of the research papers I read that came close to testing
correctly claimed that people were still using the lenses or sheets many months
after receiving them.
Is it possible that the answer is so simple they can't believe it is true? Are
they upset because they didn't discover it themselves? Are they just so
unsofisticated in thier understanding of Irlen that the testing isn't done
correctly? I don't know.
Grasha
> "charlleyw" <Piedmontslimm@...> wrote:
>
> Original message was in HTML, not including.
>
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Grasha Timmons Stone