Hi Rita,

I was out of town as I was in Sedona. I am so happy to hear that you
have gotten your son tested for color filter glasses. It is amazing
how dark blue filters help him to see due to light sensitivity. This
past year I needed to add dark gray to my filters and it has been
amazing how they have been helpful to me. I can tolerate light better
now but I am still not out of the woods yet as Helen said. I still
need them when on the computer and when my system is challenged by
light. I have good days and bad days...

Depending on your son's peer pressure and the environment around
accepting Scotopic Sensitivity Syndrome (SSS (Light sensitivity)) he
has. Others may challenge it as being a real limit to your son in
school. He, you and your family, and friends may have to overcome the
hurdles that it may bring. I think it is marvelous that you will have
a presentation on SSS for his class for the children and the teacher
to see that it is a real limit and not something less. I think you
are on the right track having this focus.

Julie Evans has some helpful hints you may want to choose to use to
further expand this education on his classmates and school as this
being a real limit for him. One thing is to concentrate on getting
him caps or hats that he likes how he looks in or feels more secure
in. I sometimes am blind when it comes to light leaks and other times
I am okay without my glasses for temporary periods but I feel wearing
the glasses for over 4 years now has helped settled my system down
for me to tolerate light more. In Sedona I recenlty purchases a lilac
cowboy hat that I love the way I look and would feel secure in
wearing it in a hatless society for women it seems. This is not the
case for all and caution should be taken accordingly to what each
person's taste and symptoms are.

I don't dare not have my glasses on when doing computer work as this
type of light affects my system negatively. I don't see Three D but I
get sensory overload and my predictability of what I am reading is
affected when I don't have them on when working on the computer. For
me, one of my symptoms is that I can't grasp the words to read, and
the glasses help me to read better. My CNS because of the SSS just
simply is not able to process them sometimes whether on the computer
or not (mainly on the computer).

Your son needs to be guided lovingly to help create him to understand
that his performance will be affected when he does not take care of
his system from light, which is a tall order to ask from a child.
Their focus is on other fun things. Keep the fun in him wearing his
glasses and he will wear them more. Keep giving him a positive
charge, as he will be discharged when others challenge wearing the
glasses as a real limit. That is the best way to maintain his
emotional health by balancing him by having a positive charged to
wear them and let others who have negative opinions and judgments
roll off of his back.

This can be hard for some of us…be patient, don't have opinions on
the people at his school (unless directly related to the facts in
helping him), and don't judge people who are not see his SSS as a
real limit as they won't budge because society has not caught up on
this being a real limit yet. Just lead them with sugar, and have them
be your friends. Friends will support that this is what needs to be
done in order to help him, and you will appreciate their help
regardless if they agree or not. It is then up to you to help keep
you son with a positive charge in life to wear them because they help
him. It is a big responsibility depending on the hurdles you will
have to make. I wish you, your son and family all the love, strength
and wisdom you will need in this transition.

Love, Lu