Hi Robin,

I have been struggling with my computer since I completely erased it
and then the work of putting everything back on it since January or
February of this year. I have decided to build me another computer
so that I can run Norton Ghost on it and that way whenever I have to
do this all I will have to do is do a Norton Ghost to bring my
computer back up running the way I like it to run. This is the
reason for my absent from this group for such a long time.

Anyway, I think that it also gave me the necessary time to digest
some exciting things that has been happening to me within this
period of time with SSS. I will make a long story short and that is
that I do not need to wear my color filter glasses like I use to. I
have stopped wearing my contacts because I use my old light filter
glasses (which are darker) as need be when working around the
computer, outside in the light, at night when riding in a car and
the contrast of oncoming lights bother me and so on...

I still have problems with glare affecting me, but what has changed
is that instead of light induced seizures it is more of pain and not
being able to focus so I tend to ignore these symptoms easily than
before as it was important to ward off light induced seizures. I
still have seizures but not the light induced pattern as before. I
don't go anywhere without my glasses!!! As I never know when I need
them to help calm my system back down. Very important for my state
of health and well being.

Do you remember when I said to you in a chat that I had accidentally
placed oil in both of my eyes? Well, this is the only thing that I
had done and then this turn of events happened. I discovered it one
day when one of my contacts fell off (March 1-03) and I did not know
that one of my contacts had fallen out...Upon discovery I panicked
and went back to the upstairs bathroom and found it to my relief.
But then it struck me that for over two hours I had been fine? No
way could this have been possible before? I calmly went into my
bedroom and laid on the bed dazed...I did not put the other contact
on and after several more hours passed and I had been watching TV I
decided to take the other contact off...I was very scared but after
doing it...nothing bad happened to me...impossible...I was listening
very closely to my system for several hours and then I forgot as I
continued to watch TV. Mind you I was indoors most of the day. I've
continued this pattern and only wear my glasses when I need to.
Weird.

Interesting you had the same experience when wearing the color
filter glasses that I did with pain. Some how wearing the color
filter glasses helped calmed down whatever was happening to my CNS
and the pain lessened. I am now seeing a chiropractor since April
2nd who has helped me further with my whiplash injuries and I can
tell the difference.

I once asked Helen if there was ever a person who did not have to
wear their glasses anymore and she said there was one person...I
wonder if it qualifies me as the second...of course I still need to
wear them as needed. The glare of light is what causes me all of
the grief now. I am sorry for waiting so long in posting and
responding but I had to be sure of all of these new changes before I
shared them with you all. I have not contacted Helen about these new
events but plan too in the future. I will let you know of the
outcome.

I want to welcome all of the new members and those who helped out
those who needed quesitons.

Lu