Hi Jennifer, Welcome to the group! I hope Holly is settling in well. I have 2 children, my eldest is 4 (will be 5 in 5 wks). She has VCFS. We got her...
Hi all, We adopted our 2.4 year old daughter Holly from China in October. We just found out she has velocraniofacial syndrome. She is our 5th child and we just...
I am thankful for all the freinds and support I have found on these support groups. I know that I have said this before, but these groups and all of you have...
Happy Birthday, Cassie! Not sure when exactly it is, but it sounded like it's quite soon. Will you be 7 or 8? Have fun!! An ... Yahoo! FareChase - Search...
Hi An I do have a son (19), but luckily there are two bathrooms in our house. My daughter (Mallory) has her room upstairs and she is the only one that uses...
Hi Kim, Thanks for sharing. I would much rather know now that this is what may lie in store for our daughter, than spend years being impatient and annoyed at...
Hi All My daughter also has a problem with wiping well. She has always had this problem. I was hoping she would grow out of it (she is 18 now), but so far...
Hi Maureen, I'm glad I am now forewarned that this might happen. It will help me stay patient with Hannah. One of the reasons I posted about this was because...
Kelsey is 12 1/2 and still calls us in to wipe after a loose poop. I didn't think we'd still be doing that in middle school. She has never been rashy from a...
Hi Barb, Much as I'm sorry for you and Cassie that you struggle with the same problem, I'm glad you shared it with me. Maybe it will turn out to be a common...
Over the last year or so I have been talking with my sister, Tammy, about creating a book for children with 22q11 DS. She is a graphic designer and her finace...
An- I am not much help here. But Cassie who will be 7 next week is the same with wiping. She is constantly getting red and sore, we have cream on hand. We've...
Hi, Bit of a strange one perhaps. At what age would you say your girls were usually able to wipe themselves properly after a wee? Hannah's 4.5 and although we...
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girls22q11ds@...
Sep 15, 2005 11:33 am
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Children Giggle ... To those of us who have children in our lives, whether they are our own, grandchildren, nieces, nephews, or students...here is something to...
Wow, Barb, that is an awful lot of money. No wonder the report seems so detailed! I really hope you can get your insurance to pay for it, as it looks like a...
They like to wait until they are about 7. We paid $1500 for the eval. Our insurance denied it, but I am fighting. CHOP suggested getting a baseline at this...
Hi Barb, Thanks for sharing Cassie's report. Wow, it sounds like a really good report to help ensure Cassie gets as much as she can out of what they teach her...
I promised some of you I would pass along the results of Cassie's neuropsych report. It is 18 pages long so bear with me. Any ideas on interventions that...
In a message dated 7/22/2005 6:02:02 A.M. Eastern Standard Time, girls22q11DS@yahoogroups.com writes: (don't know if this is just unique to us in Florida who...
Hi Barbara, I found your post about Cassie's testing very interesting. I haven't had Rachel tested yet but I'm always thinking about it. Since she didn't have...
In a message dated 7/5/2005 5:15:11 A.M. Eastern Standard Time, girls22q11DS@yahoogroups.com writes: Our son needs Nutramigen formula, we may not be allowed...
Hi, Well, I have some good news! A really nice guy from the Dept of Homeland Security, Customs and Border Protection called me back today. He had done some...
Hi, We are still hoping to be able to travel to the US for 5 weeks this summer (STILL waiting for cofirmation) for dysphagia treatment. I wonder whether anyone...
Cassie had her neuropsyche evaluation this past week. They didn't have all the results before we left, but what they did have read like the page on neuropsych...
Hi all- We just returned from the Family Cafe, Florida's State Conference on disabilities. We had a fabulous time at Disney the week before. It was a little...
Hi, Well, we're back from a week long holiday near Matlock (Peak District). We mostly stayed in the cabin as the weather wasn't great, but Hannah loved seeing...
We called genetics at CHOP about Cassie's arm. They said they had been hearing a lot about broken bones lately, but thought it was not related to calcium....
In a message dated 5/20/05 6:39:05 A.M. Atlantic Daylight Time, girls22q11DS@yahoogroups.com writes: . Have you ever considered asking whether VitalStim might...
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