Emily teacher started her on a headset program today. It's the one where the teacher has the mic and everything she says is amplified in Em's headset. We have...
Debbi, Hannah has been using a headset system since 3rd grade. She is now in the 5th grade. She continues to have a mild hearing loss in her left ear....
Hi Debbi- What is Emily still having problems with in speech. Is she still nasal? Do they think that she has some problems with hearing or more of an...
Yeah Cassie!! Is she happy that her cast if finally coming off? Is she keeping it or throwing it away? I hope she feels better soon. Hannah is off sick...
Hi, Just in case any of you aren't on the 22q11and you board: How much Speech Therapy would you say is normal? Hannah's ST wants to drop down to monthly...
An- She didn't even ask to keep it. She just has a half cast now, a plint, no pretty pink. She started vomiting last night, but it seems as if the fever has...
An- I think I answered you on one of the groups. Right? If not let me know. I would say go with your gut, if you feel she needs more speech she probably...
Emily is 6 and lost her front top teeth in October. Just now we are seeing a tiny bit of one new tooth come in. Anyone else having tooth issues? She also has...
Hi Barb, Hannah's still vomiting, but mostly at night. Today she's been a bit chirpier, but I have kept her off gymnastics (didn't tell her though!), because...
In a message dated 3/10/2005 7:59:44 AM Eastern Standard Time, girls22q11DS@yahoogroups.com writes: Since her dysphagia, she can't deal with colds Hi An, How...
In a message dated 3/10/2005 7:59:44 AM Eastern Standard Time, girls22q11DS@yahoogroups.com writes: Bearing in mind that ST don't work during school holidays...
In a message dated 3/10/2005 7:59:44 AM Eastern Standard Time, girls22q11DS@yahoogroups.com writes: enamel dysphasia (sp?) in the back teeth. fun...... Also-...
In a message dated 3/10/2005 7:59:44 AM Eastern Standard Time, girls22q11DS@yahoogroups.com writes: enamel dysphasia (sp?) in the back teeth. fun...... Also-...
Hi Maureen, Yes, that was Hannah, who ended up with Dysphagia (severly impaired swallow) following her pharyngoplasty. How Kelsey fed when she had dysphagia?...
Hi again, I've had some time on my hands for a change today, and then I always start to think. When do you tell your daughter about the deletion? At this...
Hi everyone, sorry I haven't been on here in forever but your posts about speech etc had me thinking... Rachel just turned 6 (in kindergarten) and is still...
Wow, Kate, it sounds like Rachel is doing well! It's good to hear that her ST will still see her, eventhough she could have signed Rachel off her books. And...
I hope Emily's ears are better. I hate those nasty antibiotics. i think Cassie is working on another ear infection. she has some congestion from the bug she...
Cassie had to have some of her dental work done in the office. We had a "bad" dentist that filled two of her cavities without novacaine. This pretty much...
I enjoyed this. Hope you do too. Barb (Naples, FL) I am..............for mothers of Special Needs Children. I am the little engine that did. When on my...
An- Glad to hear Hannah's on the mend. I hope she is still doing well since my reply is a week delayed. cassie's was just a 24 hour stomache thing, but...
Kate- Cassie also has the same problem with "R". CHOP told me a trick to try. Start with her tongue behind her teeth and slowly move it back while making an...
My daughter has 22q11 .... she has beaten so many of the odds OF her limitations ... last October she got married, and altho she is aT "high risk" in many...
We finally got the word that the infection is about gone. Her doctor decided not to medicate it anymore and hopefully her good bacteria will finish it off. I...
I think we may of found a good dentist. Time will tell. I can not imagine filling cavities without novocaine on an adult, let alone a child. We have a free...
I suppose Emily already somewhat knows about her condition. We have never been very quiet about it. Plus her big sis has done several research projects about...
Me too! I am so on the edge of just "going normal" this summer. Cassie is doing really well and we are so tired. I think we could use a break. However,...
The school lets me write a note to excuse Cassie from all of these. She is seen by an audiologist, opthamologist, optometrist, orthopedist and orthodontist....
This is from Jack Levine. I hope you enjoy it. Barb (FL) THE WATER POTS A water bearer in China had two large pots, each hung on the ends of a pole which he...
