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girls22q11DS · Girls with 22q11 DS

Group Information

  • Members: 25
  • Category: Support
  • Founded: Aug 21, 2004
  • Language: English
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Description

This group is for girls diagnosed with 22q11 DS and their Moms. We hope to establish a bond and support system that will help our girls overcome the obstacles they may meet in the future.

Guarding Angels


Holding my hand, helping me through,
this angels watching me in my dreams.
While I sleep, I see you smiling at me,
but I don't know if you're gonna take me with you.

But what I do know is...
I hear your voice waking me.
I open my eyes and everything is normal.
My nervous is away.

You take me home when I am healed,
and you give me a hug.
Our laughs are here again.

Flying free, take each other's hands.
Looking out the window, the birds flying,
and here we are back at home.

I'm not scared anymore,
'cause you stayed with me,
and my heart is better now

by Kelsey Haggerty
age 11


Most Recent Messages

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New site
I'm Tonya, wife to David(22q11 DS) and we have 2 dauhgers 1 of which has 22q11 DS. I created a new website for us all to be about to come together.
Posted - Mon May 5, 2008 3:50 pm
David & Tonya
david_tonya_b
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Fw: Velo Cardio Facial Syndrome Webinar Tues January 8
Barb (Naples, FL) Be kinder than necessary, for everyone you meet is fighting some kind of battle. I GoodSearch for All Kids Play Foundation of Corkscrew
Posted - Mon Dec 31, 2007 1:12 pm
Barb Southwick
dbsouthw
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Re: anxiety
Hi Barb, There's always something, isn't there? How did she get a neuropsych evaluation? Was it organised by CHOP or the MIND institute, or did you organise
Posted - Mon Nov 5, 2007 12:06 pm
An Durrant
andurrant
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Re: Digest Number 272
Thanks Barb, I do remember when I used to be concerned that Hannah was too affectionate at 3, you said Cassie was too. I guess mine has outgrown it and gone
Posted - Mon Nov 5, 2007 12:05 pm
An Durrant
andurrant
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anxiety
An- Cassie has just been diagnosed with generalized anxiety disorder. It was diagnosed by the neuropsychologist. We are meeting with a psychologist tomorrow
Posted - Mon Nov 5, 2007 11:50 am
Barb Southwick
dbsouthw
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 1
2007 5 18 4 48 23 2 5 1
2006 22 6 4 10 6 9 4 5 8 10
2005 9 8 39 6 33 1 6 4 2 9 2 1
2004 29 44 27 21 8
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