I went to see my PCP Dr. Lee and went over my options to fight this "Desi" instead of just "sitting and waiting" game. I told him I was willing to go to New...
Steve, Sorry about the delay. I was waiting for the doc to get back to me. He basically said two things: 1) the evidence is "weak" that prevacid type products...
I thought that I had prepared myself for this moment the first time that I heard "genetic disorder." I don't think anything could have prepared me for the...
There are a couple of things that I can suggest. 1. Don't over-worry things until you need to. As of now, you have suspicions about your child's health, but...
Elizabeth, I really don't have any words of wisdom. Other than please try not to be too hard on yourself. My father beat himself for many years over this, he...
Hi everyone!, It's been quite awhile, but the "old timers" I'm sure will remember me. My sister, who had a Whipple three years ago, now has cancer in the...
I appreciate your responses re. baby teeth. Soon after I posted, Luke came by to show me that he had pulled his two front bottom teeth! In fact, he pulled the...
I accidentally sent this before I had it completed. Just wanted to add-- if I can ever help you with anything, let me know. Julia [Non-text portions of this...
I have not posted in a while. My two boys 13,14 had there surgery done They both had complications. Brandon had a block. Then Arion had a leek after their...
One possible issue is desmoids that can surround the duct leading from the kidneys to the bladder. It is certainly something to check out... Good luck. ... ...
Hey there. Boy are we glad to finally find a support group for FAP. I don't know where to begin and apologize if this is too much info.....My name is Dee, my...
Hi Dee........I am very speechless right now and can't really say much cause i am all choked up.....i have FAPS also and i am 28. I was diganosed 4 years ago....
Dear Dee & family, I just saw your message & wanted to respond to let you know you will have much support from this group, & you will be able to learn from...
Dee, you've been through so much in such a short period of time.......how overwhelming. I'm glad you found this group. With Les going through such a difficult...
While surgery is not generally a great treatment for desmoids, there are some treatments available (chemo for sure, in some cases radiation). Dr. Maki at...
Hello Everyone, It's Christy, My Gastro Dr. told me after my recent scope, that my stomach is starting to have adenomatous changes. He also told me I need to ...
Dr. Hans Gerdes at Memorial Sloan Kettering in NY is a good doctor to follow your overall treatment (he is a GI doctor/Endoscopist) and I have found that his...
There is a doctor at John Hopkins his name is Dr John L Cameron. He is there Surgions in Chief. He is known through out the world for the Whipple. He did...
After positive genetic testing and initial check finding hundreds of polyps throughout, my friends daughter had a Restorative proctocolectomy (not sure this is...
you absolutley can have normal looking tissue test abnormal. the first step to abnormal cell changes is microscopic. it is only picked up by lab testing. the...
Hey everyone! I was just wondering...is anybody going to the HCCA conference this month? I have mailed in my card, and also emailed a request twice for the...
in 2-3 weeks, my dad will have to go for an angioplasty ... He stopped smoking with the help of Zyban a few months ago, but it wasn't enough... He called me...
Stephanie.........my family will be going this year. We can only go on Saturday. I have a registration card I can fax to you and anyone else who's interested....
Hi!!!! I have never heard of tissue that is normal looking to test abnormal! My scope Dr. is Dr. Treanor and my surgeon is Dr. Bonello very very good. But i am...
Michelle, Hang is there....it is always hard to see our love ones go through these trials in life. Especially when it's your close loved one and your family. ...
Hi, For those of you that had an ampullectomy, when they did the EGD to remove the stint, did they also take additional biopsies? My DH had his ampullectomy...
I had my colon and rectum removed 11 years ago. A few years ago I had a polyp in the stomach come back with mild dysplasia. The doctor immediately went back...
Steve, thanks once again for all of your help! It means so much to have at least some of the answers. A year just seems like an awfully long time to wait....
Ernie, That would be great. But I have already mailed one in and emailed two request in. I guess another try might do the trick. My fax # is (615) 952-4225....
