the doctor who's taking care of my case right now is Candis Morrison and Dr. Larry Waterbury in conjuntion with Dr. Eckhouser who is a surgeon. I have dealt...
Hi everyone. The saga continues....3 weeks post takedown today and dr. says that we will have to divert me back again to take care of a fistula. Talk about...
hi, just thought I'd pass along the news I got earlier from my doctor. she said that the cat scan I had yesterday showed that the chemotherapy shrunk the...
Hi, I just read your e-mail . I have Gardners and I know what you are going through . I have had a pretty rough time with it myself. I am here for you if you...
... are going ... for you if ... Thank you Nan for your email. I am numb today. I just don't quite believe this is happening. Somebody wake from this...
Thanks for the e-mail.Please get back to me after your CT scan and let me know what they say.Thank you Nan [Non-text portions of this message have been...
Stephanie, Do we ever have the right words? ... I wish there were words to fix all of this! Please know that we are thinking about you and we will be praying...
Currently my son David is battling a extremely large demoid, or rather three hooked together on his stomach, the largest the size of a extra large grapefruit,...
After you have had a total colectomy and the the reversal...What happens is you get polyps in the rectum????? And what happen with stomach polyps do they just...
I have had the desmoids but I also have had surgery.Mine have been on the ribs and the last one was on my lung.I have heard the chemo can shrink some but ...
I was sent the following information asking for me to forward it on to the fap community for they want to get more of us to the confrences. So here is the...
Point of information ... the rectum is technically part of the colon. So, patients who still have a rectum (like Chris and me) still have the same risk of...
Dear Gardners Syndrome online members, Just a reminder that the annual Hereditary Colon Cancer Association conference, Hot Topics in Hereditary Colon Cancer...
They did biopsy the ones in the stomach and in the rectum i will have the results tomorrow. As far as they ERCP they did it because he had never had one done....
You are in a very good place for treatment for your son. Huntsman is among the few superior places in the U. S. for treatment of desmoids. Dr. Randall Burt,...
Kathy, Please send me info. My new mailing address is: Kayla Finlay GARDEN Voices, Inc. 167 Morel Lane Rockbridge Baths, VA 24473 Where is the conference...
I know ... I think we all get that "did not go up high" comment ... but they go up high enough to sample the ileum as an indicator. There is a small bowel...
Kayla and all, The HCCA conference will be held at the Radisson Resort Knott's Berry Farm in Buena Park CA, near Anaheim. Hotel rooms will be $79.00/night for...
Thanks Kathy... not sure if I can swing a conference in California with my work schedule, but I'll get the info out. Warmly, Kayla ... From: kathykersey2003 ...
Sorry I haven't kept up with the boards much the last month, been very busy...hope this finds all doing well. I would love advice from anyone that has...
we recieved the biopsy reports today!!! they said the polyps in the rectum appear to be small bowel not sure how they couldn't tell the difference.. They said...
Opinions differ, it seems. From a copy of Dorland's Illustrated Medical Dictionary, "colon that part of the large intestine which extends from the cecum to ...
Bill my son is 20 and too has a desmoid on his abdominal wall, he too has gone through chemo and the results did not warrant continuing. Right now it is taking...
I hope this message brings reassurance that there are a lot of people who care about you. They are physicians, nurses, scientists and genetic counselors. Some...
We saw the doctors yesterday he went over the test results with us he told us that at some points chris would have to have his stomach removed but at this time...
Who knows what the future will bring with everyday research maybe by the time someday comes your son will be on the cutting edge of something knew and...
I think we have all heard about people who will eventually need their stomach removed due to polyps ... But there is one curious thing about that ... even...
