I was wondering how many people with FAP decide whether or not to have more children? And if you have decided to have more children, and your children are...
Hello fellow members, I would like to get what input I could on any information you might have concerning the clinical trials they are doing with Gardner's/FAP...
Hi Linda, First of all.. welcome here to the group. It is a wonderful place to get a lot of wisdom, experience and information. I also live in Virginia, and I...
Linda, Just adding my two cents, but it can't hurt to go out there. They even cover most of the cost to get you out there. My mom paid for her flight out...
Hello Group, Sandy here, been away a long time, Have a Prayer Request and/or Happy Thought's for Good Reports to ask of you. Candy leaves for SLC early in the...
Linda, My daughter (Candy) was DX'd with FAP/GS in Tulsa, after a year of Surgeries and Tests which helped her very little, she went to Salt Lake City to be...
OOPS... Louise, I had a message to Linda on my mind and placed a message to you as Linda instead of Louise (lprice) ughhhhh my Brain is Full! I just wanted to...
Dear Sandy, We will step up the prayers..and I will spread the prayer request for Candy and the rest of your family. Some of us seem to live in families where...
Hi Linda, Sorry I am replying days later after your original posting. I highly recommend Dr. DiSarrio and the Huntsman Institute. (I can't forget to mention...
Hi I am a new member and I have alot of questions. I have GS. My mother, 2 sisters, and two of my 4 kids have it. I am only 25! That's out of the people that...
naynay, Welcome to the group ... sorry to read about so many of your family members ... especially your niece. Please know that we are praying for a good...
About the liver tumors: This is a not entirely unknown problem (young people with FAP with liver tumors). These tumors are somewhat unusual as far as liver...
Naynay, You mentioned that your two sisters have fap. I am going to assume your sister that has the child you are talking about has fap. Now if this sister...
Hi everyone...Just to let you know, here's the scoop on my neice. She was found to have a heptoablastoma. (think i spelled it right)My sister has never been ...
Personally, unless your Niece is being seen at a major teaching hospital (like Sloan Kettering in NYC, Cleveland Clinic, MD Anderson or University of Utah) I...
We live in near detroit in Michigan and she is at St. John Hospital. They work along with the U of M ... __________________________________________________ Do...
Dear Naynay, Hepatoblastoma does show up with FAP/GS in young children. I would strongly suggest that your sister get tested as well. I'm so, so sorry that...
I will say a prayer for you sister and her family. I know this is a hard time for your sister but now she really needs to be scoped as soon as she can. Robin ...
NayNay Not too long ago we had a very sad story about someone that didn't want to know if they had this disease and waited too long. I will keep your neice in ...
I had my children before I found out I had fap but I was concived after my father knew he had fap and I don['t regret being born. My son wishes he did not...
http://www.childrensmemorial.org/depts/cancer/hepatoblastoma1.asp Dear Naynay, Here is a link to some basic information on hepatoblastoma... We are holding...
Sandy, Good to hear from you. Sorry things have been so challenging. Candy will definitely be in my prayers. Ann D. ... last ... 33 ... around ... to ... for ...
Dear Naynay, Welcome. Like others who have already responded, I urge you to make sure the folks who are dealing with your niece are either themselves very...
Hello All, Just one question, I would like to know what are the effects if any of a papillectomy. Have been keeping up with all the posts and all are in my...
Brianna had her surgery yesterday and so far, so good. On the other topic about having kids... I had 2 before my diagnosis and 2 after. It is really a hard...
Sorry it took so long to reply - been rather busy. I was told yesterday I have Patellofemoral Syndrome (basically my knee cap decides where it wants to go...
Dear Sarah, That is so strange about the kneecap situation. I was told at age 21 that I had "shifting or floating kneecaps" and that I should not play sports...
I have a question. Does this Patellofemoral Syndrome go along with Gardners? I have never heard of this. Also, does anyone else have Thyroid problems? ... ...
Thyroid tumors are associated with FAP/Gardners. My daughter has them, though currently her's are NOT malignant (based upon biopsy at Memorial Sloan...
