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gardnerssyndrome · FAP / Gardner syndrome

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Group Information

  • Members: 700
  • Category: Gardner Syndrome
  • Founded: Aug 21, 1998
  • Language: English
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Messages 21012 - 21043 of 23710   Oldest  |  < Older  |  Newer >  |  Newest
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21012 audi4kquattro Send Email Jan 22, 2009
4:36 am
Hi everyone, It's been just about 3 years since I've posted last.I used to post under wrenchnjai I have changed everything due to a ugly divorce.Since my last...
21013 Steve
sanddude1998 Send Email
Jan 22, 2009
3:03 pm
Jason --- good to see you again ... sorry for the reason, but your post has valuable info for all patients with family members who may have "ignored" this...
21015 gazzamarr Send Email Jan 22, 2009
11:10 pm
Hi I would like others thoughts on the following.....Gary (my hubby) had colonscopy in September had 65 mixed polyps removed...end result has been told he has...
21016 kevsfrannie Send Email Jan 22, 2009
11:33 pm
Wow, your husband's situation is extremely similar to my own! In my case about 50 polyps detected in series of scopes beginning late August, found to be...
21017 wr4162001 Send Email Jan 23, 2009
2:54 am
Hello Everyone, It has been a few weeks since I have posted as I had surgery (IRA) on 1- 7-09. The surgery went well, but there was an unexpected complication...
21018 oo oo
eskimobirdlady Send Email
Jan 23, 2009
3:06 am
i would like to jump in here if i may. my husband had his colonoscopy in december and he will be having his surgery in february. he has both hundreds polyps...
21019 Steph
rain_storm10... Send Email
Jan 23, 2009
4:25 am
Denise: I had my first colonoscopy @ 16 years old & had lots of polyps & by the age of 18 I had colon surgery (I only have 22 centimeters of colon left.   My...
21020 Linda Keller Payne
mrs_lsp Send Email
Jan 23, 2009
4:38 am
I have attenuated fap and so does one of my sons, the other died at age 21 of it, so just because your husband as attenuated does't mean your children will, my...
21021 Jon Olis
jonolis92677 Send Email
Jan 23, 2009
5:55 am
Glad to hear you are out of the hospital Wendy and doing good. Jon From: gardnerssyndrome@yahoogroups.com [mailto:gardnerssyndrome@yahoogroups.com] On Behalf...
21022 Jon Olis
jonolis92677 Send Email
Jan 23, 2009
6:01 am
I would give all your children colonoscopies now. Even at 16 they are due. AFAP does not pass, they could easily have FAP and could be at risk. The two...
21023 akmarocco Jan 23, 2009
6:28 pm
Hi Denise, I think a lot will depend on the path report. My mom had FAP and didn't start to develop symptoms till her 30s. As a result, I am tested every 2...
21024 Steve
sanddude1998 Send Email
Jan 26, 2009
1:15 pm
Wendy --- good to see you again, especially after your bouts with surgery. I have and IRA as well ... in my humble opinion ... it rally only takes a few days...
21025 Steve
sanddude1998 Send Email
Jan 26, 2009
1:26 pm
hi Denise --- if your hubby's diagnosis is correct, and I have no reason to believe it is not, then your children may develop polyps later or earlier than him...
21026 Jon Olis
jonolis92677 Send Email
Jan 26, 2009
2:27 pm
After my IRA I saw continued bowel improvements for a couple of years. Most of the improvements were in the first 6 months. The first few weeks things are...
21027 wendy rosenberg
wr4162001 Send Email
Jan 26, 2009
3:01 pm
Hi Jon, I think that maybe I have just been very lucky with my recovery.  Since returning home on the 20th I have noticed a steady improvement everyday.  I...
21028 wendy rosenberg
wr4162001 Send Email
Jan 26, 2009
3:04 pm
Hi Steve, Thanks for the advice.  I totally agree with you regarding the "relaxing"; part.  It really does make a difference.  LOL   Wendy ... From: Steve...
21029 Jon Olis
jonolis92677 Send Email
Jan 26, 2009
3:09 pm
That's great Wendy! Good for you. Jon From: gardnerssyndrome@yahoogroups.com [mailto:gardnerssyndrome@yahoogroups.com] On Behalf Of wendy rosenberg Sent:...
21030 Jeannie Payne
jmwpayne Send Email
Jan 26, 2009
5:05 pm
Wendy, I am so glad to hear your recovery is going so well! I'm sure it is encouraging for those that are looking at this surgery in their near future. ...
21031 gazzamarr Send Email Jan 27, 2009
4:21 am
... Frank...Gary turns 54 on the 7th February.....he had his colonscopy done on the 4th September by a General Surgeon...the polyps (65) were a mixture of...
21033 gazzamarr Send Email Jan 27, 2009
7:47 am
Jon...we don't pay for the genetic tests in Australia ...I think that is why it takes longer....Denise ... are due. ... risk. The ... FAP here. ... is a ... ...
21034 gazzamarr Send Email Jan 27, 2009
8:09 am
-Hi Steve...we are in Australia......I am definitely going to take the results of my daughter who has been scoped to Gary's Dr and ask again re scoping the...
21035 olis1@...
jonolis92677 Send Email
Jan 27, 2009
3:53 pm
I didn't pay for my testing here in the states either. But who knows. Just can't imagine that blood just sitting around for a year waiting to be tested. The...
21036 lozwoo@...
lozwoo Send Email
Jan 27, 2009
4:13 pm
Hi Wendy I'm glad to hear you are good with your IRA. I had this op in september 01, but I am yet to see an improvement as good as yours, I 'go' 2-3 times at...
21037 wendy rosenberg
wr4162001 Send Email
Jan 27, 2009
4:31 pm
HI Lorraine, Sorry to hear about your experience.  My surgeon really pushed eatting high fiber foods (with the exception of corn and lettuce).  I have been...
21038 olis1@...
jonolis92677 Send Email
Jan 27, 2009
8:14 pm
Lorraine, I had similar issues after my IRA. Try this. One metamucil wafer with each meal. Try to get lots of other soluble fiber with each meal and limit...
21039 olis1@...
jonolis92677 Send Email
Jan 27, 2009
8:21 pm
Be careful with the high fiber and focus on high soluble fiber. Later all types of fiber help but it takes time for the body to deal with the insoluble fiber...
21040 wendy rosenberg
wr4162001 Send Email
Jan 27, 2009
11:04 pm
Thanks Jon.  I never thought of the difference between soluble vs insoluble fiber.  I will be looking into more soluble fiber foods.   Thanks ... From:...
21041 Cheryl Huffman
chrylhuffman Send Email
Jan 31, 2009
4:52 pm
Hi Everyone,  I wanted to let you know that Gabrielle who is only 7 had her scopes this last week.  Lots has changed from a year ago.  Last Dec. when she...
21042 Jon Olis
jonolis92677 Send Email
Jan 31, 2009
5:58 pm
That's great news on Xander Cheryle. I hope Garbrielle and Christy do ok. Exciting news about Billy. Guess that leg is not slowing him down at all. ; ) Jon ...
21043 Linda Keller Payne
mrs_lsp Send Email
Jan 31, 2009
8:08 pm
G-d bless and keep G and X, thank G-d his brain tumor is no longer and may it 'never&#39; grow back or get another one, I am sorry for G she is so young to have to...
Messages 21012 - 21043 of 23710   Oldest  |  < Older  |  Newer >  |  Newest
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