Kim, You are correct when you write "luxury of having no desmoids." I was diagnosed on 03.05.08 with my 11th desmoid in 10 years. The desmoids have impacted...
No, I mean I let I can do nothing about what my dad decides for his OWN plan of action. I am fully responsible for my own course of action. I would never let...
Hi Everyone, I'm home from my trip to Canada and meeting Sheila! For those who feel you will never meet friends you find on this board, I am here to say,...
Hi Cheryl, Glad to see you made it home safe & sound. It was great to meet yourself & Scott. Rest up & I will talk to you again in a couple of days.Sheila ... ...
How many people on this board live in New England? shaughn shlkndy <shlkndy@...> wrote: Hi Cheryl, Glad to see you made it home safe & sound. It was...
That is so awesome to both of you. I have a related story...not to FAP, but to meeting someone you only knew through letters (Back then, there was not...
I hope you are right, I am 47 and still have not meet in adult with the disease yet. Nobody in my family can understand what it means to me to do this....
Linda, Outside of my sisters (3) and my father, I had not met anyone with GS until the fall of '06. I was 35 the first time I met someone outside of my family...
Welcome home Cheryl! Glad you enjoyed your visit! As Always ~ Steph ~ ... You rock. That's why Blockbuster's offering you one month of Blockbuster Total...
That is awsome Cheryl. Welcome home. Hugs and smiles, karlyn ... From: Steph <rain_storm1002000@...> To: gardnerssyndrome@yahoogroups.com Sent: Sunday,...
Hi Shaughan, Welcome aboard, as to whether we will ever meet in person we can meet here. I have 5 desmoids. That have stopped me fom being able to eat. 4 are...
Wonderful story Kim. Amazing how people do meet. I also believe that there are no mistakes in this life. I believe some people are brought in your life for...
Linda, You have adults with GS, here. Just because you haven't meet in person yet, you do know others. Here's an idea .....Why don't we post where were at,...
Hi everyone! It has been a while since I last posted. The last time I posted, I told you all that I will be traveling to Toronto to St. Michaels Hospital, to...
Belinda, Just know that I am saying some prayers that your date comes soon and that the procedure goes well. Prayers from my home to yours, Kathleen ...
Good luck getting that appointment Belinda. I know what you mean by the waiting. Its much easier once things are settled and you can put a plan in place. Jon...
Belinda. I understand your frustration with the Drs never hearing about GS/FAP. When my son was treated in the hospital in Idaho most of the Drs had not heard...
Hi everyone! I go tomorrow for my endoscopy and stoma scope. We are driving to Arlington Heights, IL (130 miles) and my wonderful support group from church...
Good luck Darlene! Jon ... From: gardnerssyndrome@yahoogroups.com [mailto:gardnerssyndrome@yahoogroups.com]On Behalf Of Darlene Buckel Sent: Tuesday, April 08,...
For all those interested or on the curcumin study, this is a new journal article which says that curcumin enhances the effects of standard chemotherapy for...
Thanks, Charlie. I appreciate the kind words. I believe you were moving to Memphis, correct? If so, how did the move go. I used to live there (in the...
Thanks, Jon....the scopes went okay...The upper was clear, but I had a .8mm Adenoma that had formed in my remaining 7 inches of rectum in the 6 months since...
Wendy -Good luck...glad that the pain is subsiding. John...Glad the scopes went well and you are back to riding. How large were the "aspiring polyps", and...
Shaughn, I live in Connecticut. Where do you live...I know I saw the post, but cannot remember your specific location. Thanks, Wes Sent from my Verizon...
Kim, My heart goes out to your friend. I hope she can catch some breaks moving forward. Def Leppard rocks...they were my favorite band in high school and I...
