Hi Linda, That is wonderful news. Glad they caught it so small & that it is was not in the abdominal cavity. One of my four in the abdomen is now 11.8cm x...
Nelda here, have not posted in a while. Have not kept up with the postings here due to time. But I have problems in my family so am back. I have a daughter...
This is is regards to the question last month regarding how one can live without a stomach.My husband had his stomach removed a year and a half ago.He was...
Hey, Kathleen, I would NEVER think that people don't have a clue unless they're really, really obvious about not knowing things. I feel like you - I hope very...
Hi, Linda That was Josh on the ACOR mailing list. You might want to talk to him first. I asked my surgeon about it at the time and he said it would be...
Sheila.....keep us posted on how you are doing....desmoids do scare me a bit. I do not get them...just the adhesions and am losing my insides <grin>..the doc...
Thanks, Julles, for the info. I gave her doc the website and he is going to research this avenue. Pain.......hmmmmmmmm....think it would be more painful than...
I am Marias Mom Just thought I would catch up with all of you I still have Marias son Kenny with Fap.Could someone tell me if lprice louise is still around.If...
Its Marias Mom just want to catch up with all of you.I dont think I will ever get over loosing Maria amd it is going on 7 yrs.She is watching Kenny from above...
Hi Linda, Will let you know how it goes. So far have only had two doses, second one they had to drop to 80% of the first dose due to my white cell count...
Carol, I don't think any of us "early club members" will ever forget Maria ... and I am thankful for the short time that we spent on the phone while she was so...
My Maria had the desmoids and did verry well with the Chemo it kept them at bay for a long time she didnt like it much and she lost all her hair but once she...
Just an update on my 15 yr old ...The CT scan and deep Ultrasound confirmed the desmoid in the abdominal wall. It is in the Rectus Muscle and doesn't go into...
Hello all- I've been reading for a while and figured I should post as Sheila and I are pretty much neck and neck in chemo. I started Aug 28 with the pump- 1...
Hello Guys, My dad (who has classic FAP--meaning no desmoids) started bleeding rectally very heavily yesterday just after lunch and lost so much blood that my...
Yvonne, I certainly can't tell you what to do, etc but I will tell you that my daughter has had 5 surgeries in the past 5 years removing 6 polyps....they are...
Hang in there..........Will say many prayers for you. Janie is home and doing well! Linda shlkndy <shlkndy@...> wrote: Hi Linda, Will let you know how it...
Great to hear Linda, Take Care, Sheila ... had two ... my ... will ... one, ... on ... is ... scare ... could ... the ... removed ... and ... received ... see ...
That is good news that it is in the rectus muscle & small. See what they recomend for treatment. See recent post's here from Linda , title I think is " 'a...
Hi Amy, sounds like you are on the stronger chemo. The one they will use on me if this does not work. I am on methorexate & vinblastine. I know the next chemo,...
Well we deal with Mount Sini in Toronto.We do all the genetic testing there qand deal with Cathy Burke.I know what you all are going through with the Chemo I...
My Maria had the worst form of Fap and the most agressive It started with Her no one else in the family has it except her Boy Kenny Her other son Josh has not...
I don't know. It sounds like he went into an anemic shock, sort of. Which would lead me to believe that this loss of blood may have been going on for a while,...
My oncologist said I am on a tough regimine- not THE toughest, but up there. It's Adriamycin and DTIC (dacarbazine). He wanted to do 6 to 9 rounds. Next week...
Hi Amy, Sorry to hear about what a rough time you are going through. From my experience with chemo its not necessary to have to deal with the type of nausea...
Yes, I was thinking of a adriamycin - know that one is a tough drug, thought they only gave 6 months of it. How often are you having the treatments? I sure...
Hi Carol, Sorry to hear about your daughter Maria, that must have been very hard, But glad to hear your grandson is doing well. thanks for letting me know the...
Amy Maria had the worst forom of Fap hang in there it works .She hated the Chemo but it is worth it Carol ... From: Amy To: gardnerssyndrome@yahoogroups.com ...
Hey Everyone, I wanted to post in here more or less to just vent. No one knows how Ihave been feeling, Im one of those "dont talk about it" kinda person.. but...
