Golitely...I think it is called that because you really do "go lightly" afterwards!!! LOL! Back when I had my very first colonoscopy done, I could not keep...
I remember now. Thought you might be a new Jason. The Golightly threw me off because I didn't realize anyone that's had a colectomy still would drink that...
A little tip I learned with the Golightly. Drink it cold with nose plug, all in one long gulp if you can and then pop a mint in the mouth still holding nose...
Jason, Just keep that positive attitude ... that's the only real advice I can add to what everyone else has said. Wishing you a speedy recovery! Steve ... ...
I went on vacation for about 6 days to visit my sister-in-law in the San Antonio area, as you may remember, and while there also visited with my cousin, Erna....
Hi Jason, Good Luck, I will be thinking of you. My brother has had the whipple last year & is doing well. It is a big surgery, but hang in there & before you...
Linda, I can vouch for this program. I've been participating in the Angel Food Ministry program for the last 6 months or so. It's been a Godsend for our...
Hello Everyone, I am a new member with GS. I had colon removed with J-Pouch seven years ago. Now I have twin desmoid tumors in left mid rectus muscle and...
Hi Kathleen, I have a Tarlov cyst on S1. How I understand it that usually they don't cause any problems with most people. It is rare but they can cause pain...
Hi, I have never heard of tarlov cyst. I have many sebatous(SP) cysts & apparently now they can see a bunch of little "densities" tru out the skeleton & pelvis...
Sheila, Hello! Yes I will be having my twin desmoids in the left mid rectus muscle removed some time in mid April. I have a couple more test on other parts...
Hey everyone. First of all, like a lot of you, i have a desmoid on my mesentery artery, bowel, urerter, and other lovely places. Lately me and my family have...
I am so glad to hear that, Darlene........ I made my first order yesterday along with extra meat they offered. Am excited to get the order. I will be feeding...
Hi All, My nurse telephoned me and I've to see my surgeon next thursday as ALL my results are now in. To be honest I'm a little concerned as I've been...
Gary, I will keep you in my prayers. It really does feel like we all have won the lottery, doesn't it? Keep your chin up and remember one step at a time,...
I'll forsure keep you in my prayers Gary. Take care As Always ~ Steph ~ ... Relax. Yahoo! Mail virus scanning helps detect nasty viruses! [Non-text portions of...
Jason I lost 3.5stone (about 50lb), just think while your drinking it, you won't need it after the op. What op are you having? I had an IRA in 2001. It...
Sheila, The website that I was talking about today on the phone is www.dtrf.org. This has been a great website about desmoid tumors and I feel that they will...
Everyone, Also the research foundation is also taking the desmoid tumors of patients that are having surgery (the removal from our body) and we can have them...
Is there anyone out there who has been tested, or knows of someone who has, and learns of an allelic variance of unknown significance located on the apc gene?...
Hi, I do not have GS, I just have classic FAP, so I do not have any desmoids. But I did take the opportunity to donate my large intestine, plus blood and...
Hi there, I hope what I have to say helps atleast a little. I had a blood test for the FAP gene when I was 22. ( As my mom has FAP) I inhereted the gene &...
IF YOU HAVE FAP AND HAVE CHILDREN, HAVE THEM CHECKED. THIS IS VERY IMPORTANT. FAP CAN CAUSE LIVER CANCER IN CHILDREN UNDER AGE 5 AND THERES A 1% CHANCE IT CAN...
FYI: FAP can and does cause Desmoid tumors, look it up... My mother had about a dozen of them on the MRIs she had done right before she died of liver and...
I did have my 4 1/2 year old's blood tested and liver sonogrammed for that issue and will do it again in 3 months. Just not the blood test for FAP, yet....
Thank you for your wonderful post. I did notice something and I want to make sure you understand something. You said below "But I do know that when I had the ...
