Charlie, What dosage of Celebrex are you on? I'm taking 400mg. once a day and it doesn't seem to phase my polyps. I have them growing on my stoma. Although I...
Does anyone get migraines?If not many evry day. I have many bumps on head and doctor sent me for CT scan and waiting to find out weather I need MRI If anyone...
Pammie, I have had migraines ever since my daughter was born almost 22 yrs ago. I have 3 osteomas on my head. My doctor told me years ago that as long as the...
I was getting migraines a few years ago. Really seemed to be neck and posture related. Since I discover I had FAP and had suregery I never get them anymore. ...
i had fap since i was 14 i was wondering if anyone could tell me if they no anything about the the ivf for the fap im going to see about it next week and i was...
Welcome to the Group! FAP/GS has lots and lots of manifestations. It amazes me that most Doctor's are clueless about FAP/GS in every sense of the word. Some...
Darlene, I take 2 Celebrex pills each day. 1 400 Mg in the morning 1 400 Mg at night Don't know if that helps, maybe your Doctor needs to up your dosage. ...
Hey everyone! I'm new to this group. I'm 25 years old and have Gardner's Syndrome. I enherited it from my father who passed away from it when he was 30. I've...
Welcome Rain-storm. My name is LeAnn. I also inherited gs from my father. He was 27 when he died. You are welcome to email me any time you want to talk. I...
Welcome to the group, Rain_Storm, I just joined myself about two or three weeks ago and I have Gardner's Syndrome from my father who passed away 17 years ago...
Welcome to the Group Rain_Storm. I was born in Minneapolis and my family is from Northern (Mothers family) and Southern Minnesota (Father). I have a GS...
Hi Rain_Storm, Welcome to the group. I was diagnosed with FAP when I was 15 when they discovered it in my dad. I have had ileo-rectal pullthrough surgery ...
Welcome to the group Rain_storm. I was diagnosed last June with colon cancer (stage III) and FAP at the age of 36. I had a subtotal colectomy and then chemo...
Hello everyone and thanks for the warm welcome, makes me feel good. My father passed away from 2 Desmoine Tumors one at his heart and one in his lagre or small...
I too have heard that the Desmoid tumors grow back and can multiply. I had 3 cyst like thingys in my breast last year and when they did the needle biopsy it...
Hello Rain_storm.....and welcome to the group. I was diagnosed with GS in 1965..I was 25 at the time and was told that only 9 families in the US had this...
Pam, I have had headaches ever since I could remember, but no migraines.........I also have "bumps" on my head. As a matter of fact, that was how they...
Welcome to the group, Rainstorm (Steph). I too, have all but 22 cm. of my colon out. I am 32. In the last year or two I had a cyst-like lump just below my...
I'm wondering if anybody in the group has had to deal with dating after they were diagnosed with fap/gs? I'm struggling with the fear of being accepted and...
I would probably bring it up sooner than later. My girlfriend was and is totally understanding and even plans on going to appointments with me so she can learn...
Thanks Mary. I do really like it in this group and have learned alot along with my sharing, I like to help people if at all possible. Steph ... Click here to...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the gardnerssyndrome group. File :...
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Or you can pop a couple immodiums. That works well for me. Jon ... From: gardnerssyndrome@yahoogroups.com [mailto:gardnerssyndrome@yahoogroups.com]On Behalf...
Mary, I am about as open a person as there is. I can't say for sure what I'd do or say (I'm engaged and will be married on October 29th). but, I can tell you...
I agree with Steph. Bringing it up sooner then later is the way to go. I was married when I was diagnosed but if I were single I think it would probably be...
