Hi there. I'm Charlie. I was diagnosed with FAP, almost one year ago (to the day). I was diagnosed on 7/30/04, had my J Pouch Surgery (Total Colectomy/Rectum...
Hey all. Hope everything is going well for you this summer. Quick (maybe not so quick to answer) question for anyone. I have been spitting up blood in my...
Hello Group, Sandy here... Mom to Candy and Granna to Amanda. Amanda has a colon full of Polyps and DR (Colon Rectal Surgeon) says she will need to have Colon...
Sandy, They can't check the pancreas, but they can do a small bowel follow through. I'm having one next week. You drink this stuff and then they inject dye...
Another way to check the small bowel is by swalling a camera capsule. Its a small pill size thing that takes like 2 pictures a second as it passes thru your...
While commonly stomach polyps are not removed, they SHOULD be biopsied regularly during the same upper GI scope that should check the duodenum. In my case,...
I want to make sure I am understanding you correctly. The Doc says she needs her colon/rectum removed, but, your awaiting Bx's (Biopsy Results?) first? As far...
I'd also "agree" with what is said here. At the very least they should be biopsied.......I had quite a few in my stomach and a majority of them were removed,...
OK, Charles...You know me...of course I have to chime in here. Stomach polyps should always be biopsied to rule out an adenoma. However, if the polyps are...
I have been spitting up blood in my saliva for the past 2 days. Hi Jason, I've had that problem due to acid reflux - had a quarter-sized raw spot in my lower...
Any time you have blood and you did not cute yourself or injure yourself you should seek a dr to check it out right away. If gerd is left untreated it can...
Sandy, On the stomach polyps...I think it was our doctor that gave me a copy of a study about these stomach polyps. I believe it is from Mount Sinai, Familial...
I have a 5 year old son who was just diagnosed with FAP. The doctor that we are seeing wants him to have surgery like yesterday to remove his colon, large...
I would be VERY reluctant to have my 5 year old operated on, and VERY VERY reluctant to have him operated on absent a second opinion from a major cancer center...
The very first thing I would do is get a new doctor. This is ridiculous and I find it quite irritating. It sounds to me like this doctor is not familiar with...
I'd agree wholeheartedly with what both of them said. I've had people (Medical Professionals) say "Oh well, your fine now that you've had the surgery" and I...
I have gerd. I haven't had the blood in the saliva at all though. I have a heital hernia and an ulcer starting in my stomach. After a few upper gi scopes and...
I agree fully with all the opinions said thus far regarding this email. In the case of any surgery, being you, a spouse, and especially a child, ALWAYS be...
Hello Group, HEY Thanks for the replys! Gives me more knowledge and helps Amanda out in the future. I will see if I can clarify the Questions and testing...
Sandy, Biopsy has NOTHING to do with an FAP Diagnosis. Really it doesn't. The Colonoscopy will very easily give that diagnosis, it is VERY hard to miss FAP...
Hi Sandy, There's not much more I can add other then what Charlie and others are saying is right on. This sounds fishy. Please don't let anyone cut into your...
Hi Sandy, My daughter is 18 now, and last year she had an endoscopy and then a colonoscopy and I was told immediately afterwards that she had FAP. This was...
Sandy, you have my phone number. If you need to talk, call me. I'm here for you whatever I can do. LeAnn orcutt02 <orcutt02@...> wrote: Hello Group,...
In addition to what other people have said (and I agree with them) ... The Collaborative Group of the Americas Inherited Colorectal Cancer has a list of...
For what it's worth......I wouldn't do anything until I had a second and third opinion......That is asking a lot for a 5 year old, especially with no history...
Amen to all of that............ Linda ranae1_1999 <no_reply@yahoogroups.com> wrote: The very first thing I would do is get a new doctor. This is ridiculous...
Hello: I was referred to the existence of this group just this past Thursday. My name is Dave, 29, and I live in Michigan. I was officially diagnosed with FAP...
Dave: My wife (50) and daughter (26) both have GS. Both had many polyps in their intestines and had sub-total colectomy, leaving their rectums in place....
Hello, Dave, and Welcome. It is of course a bummer to have FAP, however it is good to have a group like this to come to. The collective knowledge of this...
What, if any, symptoms comes along with having stomach polyps? I'm just curious. Did you who have them suspected it before you were diagnosed with them? ...
