Hi all, I had BOTH ends done 31 May, as well as having the top part resected I was told I had a BIG polyp removed from the bottom end, which was popping out...
website is back up sorry it took so long. It's jennireneefoundation.com if you'd like to buy a magnet or donate. It goes to a very good cause. To help research...
Lorraine, I have been told by more than one doctor that the average polyp can go from microscopic change to cancer in seven to ten years. But I don't know how...
I know that no one has been writting much so I still hope everyone at least reads the messages posted. I wanted to let everyone know that we now have gardner...
hello just a short note to say, dodged the bullit again. had upper and lower scopes, biopsis all came back no cancer. try again in 6 months. hope everyone is...
I got a call from a friend last night. I don't know if you guys knew her or not... 12-yr-old Sandrine Beldane died last night due to complications of...
... at ... that we ... Jenni- I just finished ordering my magnet and mousepad and I just love them. I am also getting one from another webgroup for Bipolar ...
Thank you so much for getting a magnet and mouse pad. I would have adopted as well had I known I had the disease before I had 3 beautiful boys all believed to...
LeAnn, Please extend our condolences to Sandrine's family. It saddens all of us to lose someone to this or any disease, especially one so young. Steve ... knew...
some of you might remember that the I was part of a study at the Cleveland Clinic ... to evaluate the performance of high dose curcumin (brand name Oxy-Q) as...
I had my Post Chemo, 2 month, CT Scan............ALL clear. My gallbladder needs to be watched, but, outside of that I'm clean. Now I have my EGD next Friday...
Excellent Leon. That's great. I get my Upper/Lower done in a week. Charlie ... lower scopes, biopsis all came back no cancer. try again in 6 months....
I inadvertantly posted a message on another Gardners sight for children. I am new to this and am hoping to find feedback regarding my family. As background,...
Jon, The study has not been written up yet ... but I am confident that the Cleveland Clinic Florida will have something available at the appropriate time. I...
hi Charles, thanks for the note, have a great nap and the results will be the same. God Bless , Leon charles99_9 <charles99_9@...> wrote: Excellent Leon....
Hey Steve - That's really grat news!!!! What HOPE it gives to the rest of us. Just wondering, do you have to come off the cellebrex to take this Oxy-Q or is...
Carole, I can only speak for myself ... I will not take Celebrex, nor Vioxx, ever again. In any case, it seems dangerous to take Celebrex and Oxy- Q at the...
Hi, Lea! I felt the same way. I also was heartbroken. My husband has FAP/GS, he's 35. We have 2 kids, age 13 & 8. Both inherited the disease. My daughter...
Hi all, I don't post often, but some know me here - I have been in the group since 1999 :) For the ones who don't know me, I'm in Montreal Canada, and I have a...
Hi Ranae, Our situations seem so similar; thank you for taking the time to respond. How in the world does an 8 year old get through a scope? Adults have a...
Well, quite honestly yes, this is the way we go through life. But, for our family, it's all we've known. I'm 34. I married my husband knowing, we had kids...
Hello, I am surprised to see someone else having children knowing they can have GS/FAP. I thought I was one of the only ones! I have FAP, attenuated form,...
Congratulations. We just "sold" our current home and are "buying" another one. WE close on both (Back to Back the same day) on July 15th. Yeeeee Haaawww ...
Congrats to you again..........My daughter had her first November 10th and he is one cute grandbaby......not spoiled at all (?) but loveable rotten. Linda ...
Lea I know you weren't talking to me but I just wanted to talk to you anyhow. I have 3 little boys ages 2,3 & 4 and my doctor strongly believes that they all...
Hello Girls: Micheline, Lea, ranael, and anyone that I have inadvertly left out......... I am 63 years of age ..... GS was diagnosed in 1965 at Wilford Hall...
