I can only respond re check ups - I go every two like clock work to stay ahead of the polyps - I encourage you do that Jim Teresa <firebellynewt1996@...>...
If you have a j pouch you can still get polyps where the j pouch is connected. I had a few about fthree years after my surgery for the j pouch. I was told...
I stopped using Celebrex because it actually clogs up my discharge and causes leaks btrieve2000 <no_reply@yahoogroups.com> wrote: I actually stopped Celebrex...
doug, thanks for the quick responses. steve ... Whipple. ... Dysplasia", ... grandfather) ... (I ... brother ... 45). ... father ... the ... doctor ... all ......
Dear Teresa, I am not a Woman , But I was young. 19 years old in 1968 God bless , Leon Teresa <firebellynewt1996@...> wrote: Has anyone else had their...
My husband, 18, 16, and 12 year old daughters all have FAP. My 18 year old daughter found this group for us. I guess I just want to say hi and get to know...
Sara...I'm glad you found this group too! My husband and two daughters all have fap. My daughters are 15 and 11 and they haven't had their surgeries yet. My...
Welcomen Sara, My name is Jon and I discovered I have FAP last June with two cancerous tumors. Had the colon out with 10 inches of colon left to attach the...
Hi I am Jim - I have had an ileostomy for 25 years and the whipple 8 years - doing well - go for check ups every two years and my son Brian who will be 27...
Jim Hi, Don't missunderstand what I wrote. I didn't say we WERE abnormal I just said FEEL abnormal. Obviously you have come to terms with FAP/GS but I ...
I have FAP, and I am married with 2 children (23 and 24). Both have FAP, and have had some non-trivial problems. I have recenly had a Whipple (6 months ago)...
Okay I must have not read Sara's post. I am also from Nj but more south. If you are down in south nj I know good family doctors that will follow up and are...
Did you have yoru kids gentic tested to find out if they have fap yet? I know sometimes if you are the first in a family to have it it is hard to find the...
Hi I've been tested and I have the 'thousands' of polyps, I haven't had kids tested yet, they will do this as they reach 10...I am getting more edgy about ...
Our doctors are Dr. Milsom and Dr. Sonota at New York Presbyterian- Cornel. It's across the street from Sloan. They are the surgeons. The gastroenterologist...
We had been going there (NYP) with my daughter for a while, but in the end went over to MSKCC with erin in order to try and consolidate things, since my son...
Robin Alison had surgery with Dr. Jeffrey Milsom. He is the chief colorectal doctor at NY Presbyterian. He no longer excepts any insurance. Nicole had surgery...
Hi, My name is Tina, I was diagnosed with GS when I was 2 years old, I am now 33. I am so pleased to find a wedsite that has other people with the same...
Hi Tina, welcome to the group. You and your son are not standing alone in this disease. Here you can talk to us and if you have any questions , we'll try to...
Hello, Why is your 25 year old Gertrude rebuilt? You told us she hadds aged along with me, I don't really understand what you are meaning with this. Hey don't...
Hello, I have also GS and FAP. Is it true that we are at risk for brain tumors?? I didn't know this. And what kind of tumors are also a risk for us?? My doctor...
Hai Lorraine, Yes I know how you feel. Did you have had any surgery yet? Did you have yoru kids gentic tested to find out if they have fap yet? I know...
Yes it is very important that you have a doctor who kwows a lot about this disease. He can hopefully give answers to all your questions. I am leaning a lot...
I have accepted the ileostomy and whipple because it has allowed me to live - I have lost one brother and my father to cancer because of the polyps - I do live...
Thank you for your question. My ostomy has shrunk to where there is no stoma above skin level and has sunken in. I can not think of the term. There also...
Hi I was diagnosed and operated on in 2001, so I am more at ease with the whole thing, but no I am the 1 in 30,000 who can just have this thing dropped from ...
I also have a sunken ileostomy. and I also have some stricture underneath that causes a problem blockage. But my doctor don't want to do any surgery to me...
Eric, Gardner syndrome is a broad term ... referring to FAP that is caused by a genetic mutation. Brain tumors, desmoids, osteomas, skin cysts, retinal spots...
