Hello all, we are off today to St Louis. First we are seeing the doctor that removed David's colon in 2002. Then we are hoping to get into a new doctor at...
Judy, Prayers and positive thoughts that you will find the appropriate doctor to tread David. I know how challenging and frustrating it is to find a doctor...
Hey all, I know it's been a little bit since I posted about my situation lately, but, that's because things are going well. :-) My Chemotherapy is going well,...
Judy IŽll be thinking of you and hope that you find a doctor to treat his disease. Love Petra and Eric Will be thinking about y'all. Hoping that things go...
Judy, Unfortunately - I'm quite experienced with the Barnes/Jewish Hospitals and have spent many days and nights there with our family. What doctor are you...
Hey Charlie - I bet you're looking forward to that takedown! I remember my daughter being so worried about it beforehand. But, the actual procedure itself...
Charlie - One more question...do you know if they'll be closing your wound? We got kinda lucky on that one, because they did close her up totally - but I...
Hey Ranae, Thanks for your comments! I am sooooooo looking forward to it because up and until now it's been kinda hanging out there that the takedown surgery...
Charlie, Sometimes if a patient has been on Chemo they take a bit to heal from what I have heard so they might opt to close your site up rather than leave it ...
I just wanted to thank you all for a warm welcome. Sorry to hear that you are going through so much Petra. Here is a question for any or all of you who may...
Yes. I had talked to a woman in Ny over a year ago. She has her whole stomach lined with polyps yet non in her colon at all. also sometimes people who have...
I am 22 years old and just found out about 9 months ago that I have Gardners Syndrome. My husband is in the Army and had been in Iraq for about 11 months at...
Wow Jenni. You've been thru a lot. Just be thankful no cancer appeared in your colon. Sounds like you're doing well. Hang in there! I was diagnosed with...
I guess I should not complain. It's a blessing I haven't got cancer yet. I am so sorry you have had to deal with that. Do you know if it is pretty certain that...
I think 100% of untreated cases of FAP/Gardners turn to cancer by 35-40 yrs of age. All the polyps in the colon just give us such terrible odds. But with...
I understand that, Thanks so much. You know it's nice to talk to other people that have these diseases. I love being able to talk to my family and husband...
Hi, Jenni! You have EVERY right to complain and this is a great place to do it. I would say on your question is it a guarantee you'll get cancer...NO!...
Jenni, Omigosh! Welcome to group! You are not alone with this disease! I applaud your bravery, your positive attitude and also how you got through your surgery...
Jenni, I also want to say welcome to group!! YouŽre not alone Petra Jenni, Omigosh! Welcome to group! You are not alone with this disease! I applaud your...
Robin, Meant to come in here and reply. Why the Vitamin "B" shot? What is behind that? I'm having a meeting with my surgeon prior to surgery and we'll go over...
Jenni, Welcome to our group and know that your are NOT alone. There aren't that many of us in the world with FAP/GS so we are a close knit group! I was just...
Hello Jenni. Just want to say dittto to what everyone else has said, This is the end of the world, this is something that if you stay on top of, can be...
I think Leo meant "this isn't the end of the world".........LOL. Typo's are great aren't they!!! :-) Charlie ... top of, can be managed, I am 55 and had my...
Thanks again so much! Sounds like you have been through a whole lot. You seem to be a very strong person. Keep your head high. I thankfully am the only person...
Thank you soooo much. It is easy when you have loving family who supports me. I am glad I have people to talk to--- In ... Iraq ... lump ... was ... They ... I...
Thanks and I am learning that finally. lol--- In ... disease! I ... got ... I ... Iraq ... have 3 ... to ... lump ... checked ... still ... looked at ... my ...
Thank you sooo much. I am the first of my family to get it as well so I understand that. I spontaneously got it. I am glad though that no one else has had to...
Hi Jenni Welcome to the group.. I was diagnosed with FAP/GS in march 01, had my colonoscopy with IRA in September 01, boy has the time flown since then......
