Ranae...I did. Did you get my response? Ernie--- In gardnerssyndrome@yahoogroups.com, ranae1_1999 ... address? ... <no_reply@y...> ... next ... Pollards) ... ...
Well we are getting settled in Louisiana. I do miss Texas. I was wondering how long it takes to get the results back from the genetic test. Matt and both his...
I just got my first colonoscopy/endoscopy yesterday. The Dr removed 50 polyps and says he saw about 50 more. I have an appointment with him next week to...
Hi, Christina. My first thought is to tell you that you don't necessarily have to have an ostomy bag if you get your colon removed. My daughter just had her...
Christina, Welcome! I'd second what ranae said. It sure wouldn't hurt to have a second opinion. Do you know for sure that you have FAP/GS?? (I'm fairly new...
Christina, I agree with Charlie and Ranae. I just found out in June that I have FAP. Doctor worked hard on me and removed 60 polyps in the remaining section...
Dear Christina and all,
I read thrugh the letter by Jon and I agree with him 99%;
> Christina,
> > I agree with Charlie and Ranae. I just found out in June...
Christina I had an IRA 3 Years ago, an IRA is Ileo-Rectal-Anastamosis which basically means that they connect the small intestines to the rectum, which means...
Paolo, Good point about the AFAP (attenuated). Doubt she has that but a family member right and that would probably dictate careful observation rather then ...
Ranea, Charlie, Jon, Paolo, Lorraine, and Anna, Thank you all for your advice and knowledge of this disease. I am 25 and I was diagnosed with FAP in early...
Your very welcome Christina. We are here to help each other and to learn from each other (and with each other). I'd recommend a website that might be able to...
Christina and Charlie, Another web site that has been very helpful to me is the following... http://listserv.acor.org/archives/fap-gs.html Acor also has a...
Jon, I agree: there is not much clinical experience with AFAP but careful endoscopic surveillance of the colon instead of surgical removal is prefereable. In...
Someone on www.jpouch.org had a recommendation for: Dr. Alexander Kingsley Don't know where he is but he is in the NE area. Hope it helps. You might try and go...
Hi all, I do not post very often but am facing a subtotal colectomy very soon. Have an appointment on Oct. 14 with a surgeon at University of Michigan Medical...
Hey there everyone! I know it's been a while since I last posted. I'm still trying to find that management job since I finally graduated college. Anyway,...
Lottie,, I am so glad to hear you are going to u of Michigan. When did that all happen? I though the last time we spoke you had to go to a va hospital? Okay...
... that all ... hospital? ... of ... about ... Robin ... God ... <http://us.ard.yahoo.com/SIG=12chd2rj6/M=315388.5455590.6541273.190163 0/D=gr ... ...
My husband and I have been here since Sunday. Things have not been going well. He was scheduled to have polyps around ampalla removed and all other polyps...
Hi Lottie, I am new to this website & have never posted before here or anywhere, obviously! When I tried to reply to your post- nothing showed - so I will try...
Charlie, Thanks. I checked out jpouch.org, but I couldn't find anything on Dr. Kingsley. I did find a list of doctors in CT though. I plan to call some and...
Ouch. I was one of the folks who had wonderful experiences out in Utah. Parly, just because things went well, partly because even though we had to change...
Christina, Not a problem at all. My "first step" surgery was having my Colon removed from where it joins the small intestine to the rectum, plus they removed...
Good Luck with everything. I hope everything turns out good. Charlie ... posted. I'm ... college. ... few ... that wrong) Since they ... cancerous, ... there...
Dear Judy, I'm so sorry that you are having such a challenging time out in Utah. Even at the best hospitals with the best doctors, you can't predict how a...
Christina, Just wanted to add two cents worth from someone that had his first surgery and age 19 in 1968, long before the Internet! The surgery I had at that...
Here are some thoughts..... First thing I did was read the actual article as published in the New England Journal of Medicine. You can access it online at the...
As you may know my girls have participated in a 3 mo. long pediatric clinical trial of celebrex. Phase 2 will start next year, unless of course celebrex is...
