Hi I've always had lumps, a double knee, lumps on my head, and my teeth abnormalities did start when my teeth came through aprox 6 months... So my kids haven't...
Hi James I have had the test but the genetics doctor said they don't do the test on children until they are 10 so they have an understanding of the outcome,...
Jon I have always had lumps and bumps. I have a double knee, various lumps on my head, one on my forehead...I just took the lumps for granted. As for my teeth...
Hi Lorraine Nice to hear from you again All we did to get to ST Marks was ask the doctor to refer us, there was no problems at all and the appointments came...
I guess I'm pretty lucky. My doctor is the head of GI at Stanford and for the VA Palo Alto. He has dealt with my father and me. He's the one that pushed me ...
Hello, I am new to this group. My optomologist is sending me to a gastro specialist to get a colonoscopy. He says there is a chance that I have gardner's...
Here is a link with some details: http://69.142.22.46/Doug/aboutfap.aspx Note that if you are reading this sometime in the future, you might want to go to...
Thanks for you response. I don't have any of the syptoms that you noted. Have you or anyone else heard of people having only the retina marks and still...
fammus, here is a link that will help you understand the eye thing a little better ... it is called CHRPE ... Congenital Hypertrophy of the Retinal Pigment...
p.s. just because you don't have other symptoms really means nothing ... unless you are already 60 years old. other manifestations of FAP and GS can come along...
Just wanted to let you all know that a web page has been set up for what's going on with me. It should make it easier for people to know the latest. We are...
Stephanie, Your web page sure does sum it up ... I know that you probably feel all alone at times, but it sure does look like that church does a good job of...
James Neither of my kids have had any of the symptoms that I had from birth, so for me as well it's luck, I hope for me and for you that it hasn't been passed ...
Carol Hi thanx for your e-mail. I would love to meet up and have a chat, It would be nice to meet someone who is in the same boat....I know other FAPers...
Hello all, I've been away from the list since last year when my niece was diagnosed and this list was a great resource and comfort. Since then my niece has had...
Beverly The Collaborative Group of the Americas Inherited Colorectal Cancer has a list of facilities and it is a great place for resources. They will know the...
Steve, Thank you so much for replying. It looks like the Ferguson Registry is at something called Spectrum Health, a group of small hospitals in western...
Hi...It's me naynay in Michigan. I see Dr. Brawai for scopes. I have always had him do mine, both sisters, and mom. He also has other gs/fap patients. He...
Beverly, I have had 2 ercp's done by Dr.Elta at University of MI and found her to be very thorough as well as gentle in doing my ercp's. I go back for another...
Beverly, The David G. Jagelman Inherited Colorectal Cancer regsitry is the Cleveland Clinic's registry ... you are right ... the Cleveland Clinic does not...
Lottie and Naynay, Thank you so much for your replies. Very helpful information. And Lottie, our very best thoughts go with you for your upcoming surgery. ...
My Daughter passed away with Gardners syndrome and I have another daughter who is still scard it might crop up with her and her 2 kids.I was genetically tested...
Since you do not know where it started, I think your daughter owes it to her children to get to the bottom of whether or not she has it. If she does not, then...
Carol, Great question ... statistics would say that Maria had an original mutation and that your other daughter would be "safe" because a 73- year-old man...
Please take a moment to remember the individuals who were lost in the storm. We were at ground zero, and even though things are ok for us now, and even though...
HI, This is Debbie and family from Homestead, Florida our prays are with you and the others who were lost in the storm. We survived Andrew and can understand....
My thoughts and prayers are with you. I am thankful for your survival and very sorry for the destruction and great loss. God be with you and yours as you try...
Steve....your message about the hurricane reminded of what it was like going thru the '94 Northridge earthquake....terrifying and humbling at the same time....
