Hi everyone...haven't posted in awhile. I lost my sister on Tuesday. She was the 39 year old that had not got the surgery yet. She had went in the hospital,...
Naynay, My deapest condolences on the lost of your sister to you and your intire family. Now she is a place where she no longer needs to fight but instead be...
Hi all - haven't been here in a while...sorry...since jan this year, I've had a back injury, wrist injury and now a shoulder injury. All of which started when...
Stephanie posted to the desmoid list. She is home now but she is in a lot of pain. Also they found two more desmoids, one that is inoperable and one they were...
Robin, that was an uplifting story...I even called my mother (who needless to say, is taking it real bad) and i believe it cheered her. Thank you. naynay ...
I have shoulder and knee pain that feels like episodes of arthritis and nothing shows up on e-rays. In the middle of the night i have to move the affecting ...
thanks...don't feel so silly. I'm 34 and the doc told me "your too young to get arthritis" (she was half serious) I've had unexplained bilat knee pain since...
I got out of the hospital yesterday. A quick synopsis of what happened to me... first - for those that don't know I was diagnosed with FAP on 6/10/04 and a...
Hi everyone. Today is the first day I really feel anywhere near trying to type anything at all. I am home from the hospital..again. They sent me home after...
I went to the U of U for a polyp problem (in stomach and duodenum) and while I have no idea about the folks that would help you re: desmoids, Dr. DiSario is...
Jon sorry to hear your news. I was afraid of something like this when we didn't hear from you right away. My husband had a leak after his first surgery too....
Stephanie, Glad to hear your home from hospital. This time for good we hope. Why do hospitals send people home so early? I don't understand. Especially mothers...
Thanks Judy. I'm feeling much better today this this morning. I might even sleep good tonight. I'm pushing this pain out of the way pretty quickly. All I've...
my doc says she'll research if there's a link between gardner's and these three "pains" but wondered if anyone here knows of a connection other than osteomas...
Jon....... I'm sorry to hear about the complications but I'm glad to hear you're feeling better. It's true that you needed to get your colon out asap....so you...
Hi, Jon! So sorry you have to go through this. My husband has FAP, and his sister as well. My daughter has FAP, she's 12. She also had to get a temporary...
Jon Glad you're home!!! I just wanted to let you know that this can all be too much sometimes and be overwhelming, but take one day at a time and don't loose ...
Thanks Ernie. I actually have a package on them that I'm about to open up and review. Just curious, how does one go about get Chemo from out of state? Or is...
Thanks a lot for the info. What I need is a bunch of rambling just to make me understand what others are going thru. By the way, mine is the "end" kind. I...
Jon....I have been taking my daughters(ages 10 & 14) to M.D.Anderson to participate in clinical trials since the spring of '02. We have been very impressed...
You definitely give me lots to think about. I need to find out if my HMO covers any of these comprehensive cancer centers. Do you know anything about.... ...
Well, I am new to groups and new to this disease. Actually I'mnot completely new to the condition but new to it effecting my life. My husband has it not me,...
Well, I hope this is how you reply...I've never done this before. Hi Jon, I am sorry to hear about your difficulties! I amsorry you had 'complications' and I...
my son is four years old and has been diagnosed with FAP since he was 3 months old. he has had 3 tumors removed and is gonna have the 4th one removed in a...
Thanks for the thoughts. You are replying correctly. As far as your children I believe there are others on here that can help. Sometimes it just takes a day...
