Just thought I would let you know that my surgery has been cancelled due to the strikes happening here in BC have to phone the surgeon in the morning to find...
Hello again. I have just had alot of abdominal pain (cramping) where my ovaries use to be and had an ultrasound to coincide with the ct scan with an injection....
Hi to all of you, I am asking for prayers for my 9 year old nephew, Luke. He was in Omaha (Creighton) Tuesday for his check-up, & the doctor said he had polyps...
I'm not a religious person but having two children myself my heart goes out to you and the whole family, I do not pray, but I will have a quiet word and I...
Hello to all of you I live in England and was diagnosed with FAP and Gardners 5 years ago after a planned operation to remove my colon and have a permanent ...
Just wanted to let everyone know that ERCP was done on 4-30-04 and I feel wonderful. I have of course, felt slightly better everyday since ercp, but today was...
I am new to the group and could really use someone else to relate to. I was diagnosed with Garders 14 years ago (I was 10. My father had already passed away...
In the end, I went to University of Utah on May 6th for the second opinion, with Dr. Holly Clark, a fellow of Dr. DiSario. Needless to say, the time there...
For more info on the Utah trip and the upcoming surgery, I have set up a Web site for family and friends: http://doug.programmingasp.net ... to ... and ... ...
Doug, Thank you for creating your web site ... you and Jean are doing a great job ... inasmuch as we are sorry to hear how extensive this thing has become...
Had my semi-annual scopes, endescopes stomach,duedinum looked the same. the impula looked great, took biopsies, whating for results. First sigmoid sense last...
Hi Sorry I never go to update you on my surgery. It wasnt cancelled after all. I got a call at 7am the next morning and had to be at the hospital by 7:10am. ...
Yippee you are home! I know adjusting to the ostomy is not fun, I had the hardest time getting use to it and getting that dag gone bag to stick for at least a...
My heart and Prayers are with you I have a 14 year old Grandson with Gardners and lost my 33 year old Daughter to Gardners in 2000. Carol ... From: Clark L. &...
It is very hard to watch someone you Love suffer so much.You sometimes feel the Pain yourself.I have a grandson with Gardners and the thoughts of watching him...
My daughter had all kinds of them taken off she had the worst form of Gardners I also have a grandson with it.Welcome Carol ... From: micklemass1942 To:...
Hi, Julia. I will definitely add them to my prayers. I totally understand what they're going through. My daughter just had her colon removed, along with the...
For those of you with very young children...under 12 or 13 that have already had problems with FAP...what clued you in to have them checked at such an early...
... relate to. ... had ... his ... some ... my ... have had ... because my sister and I get multiple ovarian cysts and when I asked my gyne, he said it...
My daughter is 12 and she has FAP. She has a temporary ostomy now and will have this reversed when some other complications clear up from the first surgery....
... you ... age ... child ... Renae, I go to Cleveland Clinic, and my son will go there as well. They're one of the best places for FAP. It's about a 4 hr...
ello Its been a while since I've written but I read all messages. There are days I try to write but freeze up. It makes it all to real for me. I'm writing my...
I expect that you really will have to make the decision at some point. Absent a colon removal of some sort, you have virtually a 100% chance of colon cancer. ...
Congratulations to your son and his achievement! You must be so proud of him. Warmly, Kayla ... From: btrieve2000 To: gardnerssyndrome@yahoogroups.com Sent:...
Thank you Kayla! We are amazingly proud of him. I should also clarify that Tim got through it because we continue to see doctors who see LOTS of desmoid...
That is the key that we're all realizing... to find a doctor at a Medical Center of Excellence who sees "lots" of patients with the issues that we have. It is...
My husband who has FAP was sent to hospital today for a EDG. They found thousands of polyps in his stomach. They were there before but Doctor that diagonosed...
