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gardnerssyndrome · FAP / Gardner syndrome

Group Information

  • Members: 615
  • Category: Gardner Syndrome
  • Founded: Aug 21, 1998
  • Language: English
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Description

FAP/Gardner syndrome is about genetics and disease. This group helps us to understand that genetics does not always mean inherited, and you don't have to be so scared and alone. We need to educate as many people as possible. We need to educate ourselves and our families. We need to educate insurance companies. We need to educate pediatricians, dentists, dermatologists, interns and gastroenterologists. Treatment for FAP/GS is not only with surgery and drugs, but with emotions. We need to know the plan of attack. We need to know the possibilities and probabilities so that we can be armed with the knowledge to go for multiple opinions when necessary ... so we can mix our own combination of emotion and fact to decide yes or no to a particular drug or surgery ... so we can decide whether or not to have children. ---- Steve

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Re: Inability to swallow after surgery
Mandy, I was just thinking back and I remember after one of my surgeries that I had trouble swallowing food. It was like my toungue was messed up or
Posted - Tue Nov 10, 2009 3:45 pm
olis1@...
jonolis92677
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Re: Inability to swallow after surgery
This is really upsetting and scary Mandy. She has no history of this swallowing problem? Its almost like they stirred up a problem that didn't exist from the
Posted - Tue Nov 10, 2009 3:37 pm
olis1@...
jonolis92677
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Inability to swallow after surgery
All, My youngest sister Rebecca (21) is still in the hospital from having her colectomy. The surgery itself seemed to go well, but she cannot swallow liquids
Posted - Tue Nov 10, 2009 1:57 pm
Mandy Mathews
m_mathews21
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FAP Study- repost
Dear FAP group members, I am a graduate student in genetic counseling at the University of South Carolina School of Medicine and am conducting research on
Posted - Mon Nov 9, 2009 2:03 am
Sara
sarajean2003
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Re: Re Thrush (Jon)
Not sure on the urine. Could have been the catheter or could be some differences in the female anatomy and how they perform the surgery. Don’t know. Some
Posted - Sun Nov 8, 2009 11:23 pm
Jon Olis
jonolis92677
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