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gardnerssyndrome · FAP / Gardner syndrome

Group Information

  • Members: 679
  • Category: Gardner Syndrome
  • Founded: Aug 21, 1998
  • Language: English
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1 New Member - 2 New Messages - 4 New Photos - New Questions

Description

FAP/Gardner syndrome is about genetics and disease. This group helps us to understand that genetics does not always mean inherited, and you don't have to be so scared and alone. We need to educate as many people as possible. We need to educate ourselves and our families. We need to educate insurance companies. We need to educate pediatricians, dentists, dermatologists, interns and gastroenterologists. Treatment for FAP/GS is not only with surgery and drugs, but with emotions. We need to know the plan of attack. We need to know the possibilities and probabilities so that we can be armed with the knowledge to go for multiple opinions when necessary ... so we can mix our own combination of emotion and fact to decide yes or no to a particular drug or surgery ... so we can decide whether or not to have children. ---- Steve

Most Recent Messages

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Re: Gardner's syndrome survivor
thank you for note --- since 1988 myself ... and thanks to this condition and an unbelievably wonderful wife, I learned how to exercise, I learned how to live
Posted - Mon May 21, 2012 4:41 pm
Steve
sanddude1998
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Gardner's syndrome survivor
Just wanted to post a note of hope ... I'm a 21 year survivor of FAP/Gardner's syndrome ... and even consider myself blessed for such ... through the
Posted - Sun May 20, 2012 6:37 pm
standw2fists
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Re: So many questions
Deana, First of all am sending you a big hug because this is a lot to digest. My 12 yr old had surgery last year and I am so glad I had opportunity to do
Posted - Wed May 9, 2012 10:38 pm
Danielle Murdoch
bailey392000
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Re: So many questions
I would also strongly suggest testing on your children right away. I, too, have fap, but am the mutated gene in the family. Im now 43, but had symptoms at age
Posted - Mon May 7, 2012 11:49 pm
Debbie L. Mangold
debbie.mangold
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Re: So many questions
Welcome to the group. Does your family have a known mutation that you are specifically looking for? The reason I ask is so you don't get confused when you get
Posted - Mon May 7, 2012 9:57 pm
JeannieP
jmwpayne
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 40 33 10 10 12
2011 14 8 41 55 34 40 22 149 42 67 36 45
2010 135 116 76 117 37 53 88 22 52 76 25 47
2009 75 63 52 94 191 137 117 72 72 88 30 41
2008 232 128 251 251 219 236 334 247 226 438 143 135
2007 409 321 221 172 415 295 402 158 136 336 299 149
2006 153 107 164 302 285 220 93 151 143 237 75 271
2005 139 103 211 75 122 73 243 174 124 122 120 150
2004 107 74 90 129 59 81 114 46 148 103 87 252
2003 193 107 125 88 140 143 73 99 69 44 114 124
2002 310 341 235 229 120 92 122 117 86 146 45 91
2001 238 107 146 193 179 99 72 99 91 128 236 149
2000 168 83 240 316 284 216 267 330 268 177 219 144
1999 105 122 67 195 124 155 116 147 246 218 192 172
1998 2 35 70
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