FAP/Gardner syndrome is about genetics and disease. This group helps us to understand that genetics does not always mean inherited, and you don't have to be so scared and alone. We need to educate as many people as possible. We need to educate ourselves and our families. We need to educate insurance companies. We need to educate pediatricians, dentists, dermatologists, interns and gastroenterologists. Treatment for FAP/GS is not only with surgery and drugs, but with emotions. We need to know the plan of attack. We need to know the possibilities and probabilities so that we can be armed with the knowledge to go for multiple opinions when necessary ... so we can mix our own combination of emotion and fact to decide yes or no to a particular drug or surgery ... so we can decide whether or not to have children. ---- Steve
I rejoice in your good news Cheryl! Kim ... to be able to. ... in 5 weeks!! Looks like my weight is starting to maintain! It's been 16 months since whipple.
Great news about getting the appointment. Sorry it took so long and that you had to have the added stress of just getting the appointment. Stay positive and
I had my endoscopic ultrasound performed Tuesday at the University of Michigan where it was determined that they cannot do anything about the areas of concern
After ranting and complaining all afternoon yesterday, my GI's incompetant secretary called me today, I go to Toronto to meet with Dr. Kortan and have the
Yes Cheryl... you are right, Christie and I are the same age, I will be 29 in September, but only diagnosed at 22., ileostomy at 24, learning more and more