Hello. My name is Dorothy and I am a co-founder of a support group
called Fuchs' Friends. It is a PRIVATE group, and our members get a
lot of information and support there. This message board is public
and was set up to help folks like you to find our private group.
Please go to http://www.fuchs-dystrophy.com and click on the Request
to Join button. Also, I'll email you privately and give you the links
to a website about my personal journey with our Friend Fuchs', as
well as another webpage our group has put together to help outsiders
understand how our eyes see the world.

I'm glad you found us.

Dorothy in Calif.

--- In fuchs_corneal_dystrophy@y..., "tonjabell" <tonjabell@y...>
wrote:
> Hello, I am new to the group. Thanks for having me. I was
diagnosed with Fuchs' Endothelial dystrophy about 6 or 7 years ago.
It is a shame that I don't remember exactly when...or to even know
that I had what I had. On a yearly vision screening to have my
prescription adjusted the physician stated that I had fuchs'
dystrophy....when I asked what it was....he said...well you know when
you get that feeling like you have a film over your eye? Yeah, well
I thought...oh okay....its just something that comes and goes...no
biggie. Well, low and behold here I set 6 years later...can't see
hardly a darned thing...been back and forth to the optometrist and
had glasses changed two years ago....still can't see well...then I
had this "attack". I woke up one morning and couldn't see. I mean I
couldn't see squat...couldn't count my own fingers. How scary! I
had no idea. Once I finally manage to get someone to drive me to the
dr...I find out it is this "fuchs' thing"that has caused ti. Why
wasn't I informed that this is what was going to happen? Now two
years later...vison has really gone down hill. My left eye hurts
nearly all of the time. I have blow dryed my eyes til they should be
like alligator skin. Now I am using Muro 128. By the way....I
cannot read what I am typing....thank goodness for the great typing
teachers I had in high school and college. What do you do? Who do
you see. How do you get there from here? I am just overwhelmed with
questions. Is there anything that can be done about the eye pain?
How long does this thing go on before I am offered a transplant...by
the way...I have actually only been examined twice for this
problem....how did I get this far without getting help...mind you I
get glasses every two or three years...and have a yearly exam! I am
39 years old. Can't read scripting on a TV. Can read large print
books....but lord not those small things. I have difficulty seeing
the picture on the tv or seeing to drive. I am as accident prone as
they come....why...cause I can't see. Help...someone please point me
in the right direction. I am already legally blind in my right
eye....have been since a teenager...now...what do I do? I feel
Desparate!