Hello, I am new to the group. Thanks for having me. I was diagnosed with
Fuchs' Endothelial dystrophy about 6 or 7 years ago. It is a shame that I don't
remember exactly when...or to even know that I had what I had. On a yearly
vision screening to have my prescription adjusted the physician stated that I
had fuchs' dystrophy....when I asked what it was....he said...well you know when
you get that feeling like you have a film over your eye? Yeah, well I
thought...oh okay....its just something that comes and goes...no biggie. Well,
low and behold here I set 6 years later...can't see hardly a darned thing...been
back and forth to the optometrist and had glasses changed two years ago....still
can't see well...then I had this "attack". I woke up one morning and couldn't
see. I mean I couldn't see squat...couldn't count my own fingers. How scary!
I had no idea. Once I finally manage to get someone to drive me to the dr...I
find out it is this "fuchs' thing"that has caused ti. Why wasn't I informed
that this is what was going to happen? Now two years later...vison has really
gone down hill. My left eye hurts nearly all of the time. I have blow dryed my
eyes til they should be like alligator skin. Now I am using Muro 128. By the
way....I cannot read what I am typing....thank goodness for the great typing
teachers I had in high school and college. What do you do? Who do you see.
How do you get there from here? I am just overwhelmed with questions. Is there
anything that can be done about the eye pain? How long does this thing go on
before I am offered a transplant...by the way...I have actually only been
examined twice for this problem....how did I get this far without getting
help...mind you I get glasses every two or three years...and have a yearly exam!
I am 39 years old. Can't read scripting on a TV. Can read large print
books....but lord not those small things. I have difficulty seeing the picture
on the tv or seeing to drive. I am as accident prone as they come....why...cause
I can't see. Help...someone please point me in the right direction. I am
already legally blind in my right eye....have been since a teenager...now...what
do I do? I feel Desparate!