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Reply | Forward Message #64 of 85 |
Re: New Diagnosis

Hi, Sharon,

You have joined the fuchs_corneal_dystrophy group, a public group
which has been set up solely to help you find your way to an active
PRIVATE support group called Fuchs' Friends.

This is NOT the private Fuchs' Friends support group which has over
530 members sharing and caring. To join that group you must go to
http://www.fuchs-dystrophy.com and click on "Join."

To join the private Fuchs' Friends group, you need to fill out the
application at http://www.fuchs-dystrophy.com. Then you will receive
an invitation from Yahoo to join the Fuchs' Friends group. You MUST
respond to that invitation to join the private Fuchs' Friends group.

At Fuchs' Friends, members discuss problems caused by FCD and our
solutions to those problems, and you will have access to a members
only site with lots of information about Fuchs'. The benefit of the
private group is to keep the public from reading information we share
that we might not want all the world to know, etc.

Because the fuchs_corneal_dystrophy group is a public Yahoo group set
up only to help you find your way to Fuchs' Friends (and to prevent
confusion about where to post your messages), you will be
unsubscribed from the fuchs_corneal_dystrophy group as soon as you
have accepted the invitation from Yahoo to join Fuchs' Friends.
Please save your questions and comments about Fuchs' for the private
support group, Fuchs' Friends. Questions and comments posted at
fuchs_corneal_dystrophy should be confined to information about how
to join the private support group. We look forward to seeing you
there.

If you do not wish to join the private support group, you can visit
http://www.fuchs-dystrophy.org (Through A Glass, Darkly) for a
detailed story of one woman's 25-year journey with Fuchs' Dystrophy.

Regards,
Dorothy
Moderator, fuchs_corneal_dystrophy


"sllayton1" wrote:
Dear Fuchs' Friends:

I have just been diagnosis with Fuchs'. I've had several episodes
(over a year's time) with blurred vision in the morning and I was
sent to an eye doctor who diagnosed the problem.

I have questions about how to prolong the disease (loss of cells). I
use a computer almost all day in my job. Will this cause my
condition to deteriorate more quickly and would a glare screen help?

I am going to wear sunglasses and hats in the sun at all times, but
are there any other suggestions anyone would have to "save" the cells.

I think I am in the early stages of the disease but I'm not sure.
I'm 53 years old and have a very active life. How long does it take
to have blisters, loss of sight, corneal transplant, etc.? I'm
trying to be optimistic and realistic at the same time.

Thanks for your help,
Sharon




Sat Jun 8, 2002 5:13 am

chuckles1717
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Forward
Message #64 of 85 |
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Hello, I have just been diagnosed as having this particular problem and am naturally interested in what it's all about. I don't spend much time on here but...
petcaren
petcaren@...
Send Email
May 14, 2002
10:02 pm

Hi Caren in NZ: FD is thought to be a genetic disorder. I became aware of it about 15 years ago when I developed a painful blister on my left cornea. It seems...
steve palmer
doctorroof1
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May 15, 2002
10:37 pm

Hello Again Thanks for that Steve/Chuckles. I have to say that I was essentially asymptomatic until a regular eye check when it was picked up as an...
petcaren
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May 30, 2002
2:42 am

Hi, Caren, It is true that Fuchs' can move very slowly and may never cause you a serious vision problem. But sometimes it picks up speed, and that is when you...
chuckles1717
Offline Send Email
May 31, 2002
2:03 am

Hi, Caren, You'll be wanting to join our private YahooGroup "Fuchs' Friends," I'm sure. We have tons of information there, and we share the experience of...
chuckles1717
Offline Send Email
May 15, 2002
11:27 pm

Dorothy, I am a member of Fuch's friends. I cannot get past the home page for FF though. How do I access the message boards, chat room and such? If I go to ...
dwalt75090@...
dwalt75090
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May 31, 2002
3:14 am

Doug, I will forward your question to Moderator Mike. You're caught in the Yahoo Snafu, and nobody better than Mike to get you unsnarled. Hang in there. Mike...
Dorothy Acton
chuckles1717
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May 31, 2002
4:14 am

Thanks for your help!!!...
dwalt75090@...
dwalt75090
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May 31, 2002
4:20 am

Hi there Fuch's Friends - I am a "young" gal of 66 and was diagnosed with Fuchs Corneal Dystrophy about 12 years or so, and have done very well until about 3...
shirley327@...
shirleyj65wi
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May 31, 2002
5:30 pm

Dear Fuchs' Friends: I have just been diagnosis with Fuchs'. I've had several episodes (over a year's time) with blurred vision in the morning and I was sent...
sllayton1
Offline Send Email
Jun 7, 2002
1:50 pm

Hi, Sharon, You have joined the fuchs_corneal_dystrophy group, a public group which has been set up solely to help you find your way to an active PRIVATE...
chuckles1717
Offline Send Email
Jun 8, 2002
5:13 am
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