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Reply | Forward Message #45 of 85 |
Re: New Diagnosis

Hi, Caren,
It is true that Fuchs' can move very slowly and may never cause you a
serious vision problem. But sometimes it picks up speed, and that is
when you need to be aware of what these vision changes mean and what
are your options. My vision got cloudy when I was 60. Is that
considered "very old"? [female indignity cropping up here. LOL!]
Anyway, I still work quite actively, and I was able to continue my
work after having a corneal transplant, a surgery not to be taken
lightly because of the very long healing time and patience required.

You can join a private support group by going to this website:
http://www.fuchs-dystrophy.com and looking for the "Join" button.
That group has over 520 members in all stages of Fuchs', so if you
want to compare notes, check it out. The private group calls itself
Fuchs' Friends. It's been in existence for over two years now, and in
the 18,000 messages the members have posted, I have never heard of
the Hudson-Stahli line. You might try typing that into a good search
engine and see what you can find out about it.
Dorothy in Calif.

Caren wrote:
I have to say that I was essentially
> asymptomatic until a regular eye check when it was picked
> up as an abnormality and the Optician referred me to a specialist.
I
> can only describe it as having been 'aware' (gritty uncomfortable
dry)
> of one eye more than the other but now can see that it has been an
> insidious condition. He has told me that it is a common disorder
and
> the worst that can happen is that my eye/s become 'cloudy' by the
time
> I am 'very old' Also there is a Hudson-Stahli line across the lower
> 1/3 of the corneas, do these things normally go together?
>
> His actual words are:
> 'Bilateral Fuch's endothelial dystrophy. This condition is fairly
> benign and seldom causes significant visual impairment'.
> 'Bilateral corneal epitheliopathy secondary to tear dysfunction'.
>
> Having read some of the info on Fuchs' Dystrophy it would appear to
be
> a little less 'benign' than he would have me believe but I don't
want
> to look on the dark side (sorry, no pun intended at all!) but would
> prefer to know what 'could' eventuate.





Fri May 31, 2002 2:03 am

chuckles1717
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Forward
Message #45 of 85 |
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Hello, I have just been diagnosed as having this particular problem and am naturally interested in what it's all about. I don't spend much time on here but...
petcaren
petcaren@...
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May 14, 2002
10:02 pm

Hi Caren in NZ: FD is thought to be a genetic disorder. I became aware of it about 15 years ago when I developed a painful blister on my left cornea. It seems...
steve palmer
doctorroof1
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May 15, 2002
10:37 pm

Hello Again Thanks for that Steve/Chuckles. I have to say that I was essentially asymptomatic until a regular eye check when it was picked up as an...
petcaren
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May 30, 2002
2:42 am

Hi, Caren, It is true that Fuchs' can move very slowly and may never cause you a serious vision problem. But sometimes it picks up speed, and that is when you...
chuckles1717
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May 31, 2002
2:03 am

Hi, Caren, You'll be wanting to join our private YahooGroup "Fuchs' Friends," I'm sure. We have tons of information there, and we share the experience of...
chuckles1717
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May 15, 2002
11:27 pm

Dorothy, I am a member of Fuch's friends. I cannot get past the home page for FF though. How do I access the message boards, chat room and such? If I go to ...
dwalt75090@...
dwalt75090
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May 31, 2002
3:14 am

Doug, I will forward your question to Moderator Mike. You're caught in the Yahoo Snafu, and nobody better than Mike to get you unsnarled. Hang in there. Mike...
Dorothy Acton
chuckles1717
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May 31, 2002
4:14 am

Thanks for your help!!!...
dwalt75090@...
dwalt75090
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May 31, 2002
4:20 am

Hi there Fuch's Friends - I am a "young" gal of 66 and was diagnosed with Fuchs Corneal Dystrophy about 12 years or so, and have done very well until about 3...
shirley327@...
shirleyj65wi
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May 31, 2002
5:30 pm

Dear Fuchs' Friends: I have just been diagnosis with Fuchs'. I've had several episodes (over a year's time) with blurred vision in the morning and I was sent...
sllayton1
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Jun 7, 2002
1:50 pm

Hi, Sharon, You have joined the fuchs_corneal_dystrophy group, a public group which has been set up solely to help you find your way to an active PRIVATE...
chuckles1717
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Jun 8, 2002
5:13 am
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