Hey that's pretty cool Armando :-) Do you know any of the other FSH folks around NYC? ... From: Armando Quiroz To: fshsociety@yahoogroups.com Sent: Wednesday,...
Please could anyone point me in the right direction of the roller attachment that joins to a push wheelchair to make it electric. Mags [Non-text portions of...
Hi Megs, try these: Wheelchair Power Add-ons * Alber <http://www.ulrich-alber.de/html_e/html_1home_e/ab_set_e.html> - German manufacturer of the following...
I don't understand that,Wayne. My calf muscles deteriorated before my tibialis anterior muscles. Having to wear AFO's didn't help and I think my calf muscles...
... mags avoid using the Stand-Aid product, Roll-Aid. i had a horrific accident due to the faulty brake/hold system that attaches the tiller/wheel to the...
John, Were you genetically test ( blood test ) to confirm that you have FSHD? I find it odd that you calf muscle deteriorated first. Are there more out there...
Hey everybody, does anybody know which function Tribasic Calcium Phopshate and Iron Peptonate have? Van Meter used it in his study 1954. I cannot find ...
Does anyone know how to upload "word doc" attachments to this site so that others can download them? We have a new MDA patient coordinator here who is really...
Google it!!!!!!! ... __________________________________________________ Do You Yahoo!? En finir avec le spam? Yahoo! Courriel vous offre la meilleure...
Hi Amy, with my MAC and netscape as a web browser and e-mailer, all I have to do is hit the attach button, find the desired file with the .doc format and...
Hmm, I thought it might be interesting to get an idea of how peoples weight has changed over the years as their FSH has progressed and how much of their weight...
hi chiro adjusted my thumb and all carpal's. really "free'd" up the hand. still hurts like crazy, tho. he agreed with me that there is definitely something...
My calf muscles used to be quite developed, roughly following the pattern you had described, Wayne. However, in the last three years they have started to...
Hello - My name is Kate and I am a Speech Pathologist in Las Vegas, NV. I recently encountered my first patient with FSH dystrophy and I have questions - many...
Your last statement may be the key. I had foot drop since early teens and braces in the teens so I put more demand on the calf muscles to push my toes off the...
Your body has amazing healing properties given time. The keys are remove the continued strain on the joint. Don't stick it out and lean on it. It can not take...
No Wayne, I have never had a blood test to confirm whether or not I have FSH. Anyway, what difference would that make? Whatever I have makes the muscles waste...
Hi Kate, I have a daughter with FSH, and she does have just a little difficulty swallowing, but only a little and with harder foods. It depends on the severity...
A MUST READ...WE MUST ACT IMMEDIATELY. Since attachments won't work for this board, I'm cutting & pasting the letter here. These medicare cuts are scheduled to...
Oh Linda, I so hope that the stabilization works for you. You're going through a very tough time right now. {{{{hugs}}}}} Amyb ... hand. ... hasnt ... and ... ...
I and other family members with FSHD have difficulty swallowing and seem to choke easily even on their own saliva. I was diagnosed as having difficulty...
November 2, 2006 Lex., MA 02421 USA Dear Kate: Some thoughts on speech, elocution and diction. 80 percent of folks with FSHD have high frequency bilateral ...
There is another MD similar to FSHD that affects the legs differently. It occurred to me that you may have that John. Not saying that you do it is just a...
Just reading Dr.Padberg's paper, he says that the calf muscles remain intact for a long time. ... you ... more ... compensating ... walk ... atrophy ... ...
One aspect is that our lips do not move or do not move well when speaking. Many people subconsciously lip read as well as hear so this visual aspect is lost to...
... amy! thank you for posting this. in previous posts, i mentioned that our members go over to www.wheelchairjunkie.com, where the full story is written up...
I have had a seeming "reversal" of drop foot. 7-10 years ago, I started experiencing drop foot walking across a flat concrete floor at the school where I...
