My best friend's daughter has CP and she is 2 1/2. Her therapy and Eli's therapy is very much the same stuff. But, CP certainly is different than FSH. CP...
Oh I think we just missed you in Vegas :) We were there Tues until Friday (today.) My little guys adore Vegas (aren't I a bad mom??) Just kidding....we love...
... Yes my daughter has found out their is help out their and the baby is in OT & PT. He is doing great he now rolls over!!! They have taught my daughter...
Hi Ray, Are you back in LA yet? If you are, and you have some free time, drop me a line and maybe we can get together again. Or email me privately for my...
At 57 years old, I've lived a complete life, even having FSH for 45 of those years. I was diagnosed at 13 around, my younger brother diagnosed with FSH at 21....
If anyone is interested, I will be competing in the NY City Triathlon on July 16th as part of the USA PC National Team (the only athlete with MD). I hope ...
I'm very glad to hear about your efforts :) Although we are on the other side of the country it is very exciting. I checked out your website. Very inspiring...
Hi Frank, Yeah, got back to LA yesterday. I'm not sure about free time...... but we're heading for Venice Beach today. Send me a cell phone text message on...
Go Ryan! ... From: rmlsd@... To: fshsociety@yahoogroups.com Sent: Sunday, July 02, 2006 12:04 PM Subject: [fshsociety] NY City Triathlon If anyone is...
Hi Tanya, So sorry we missed each other. I was there in Vegas for the entire time you were there. If only we could have crossed paths. Oh well. Yep, it was...
What do you think? Will it help us if we take large doses of creatine? In the studys they always take only 5g/day, in my opinion thats to low, 10 or 15g would...
I am on diltiazem and I think the experiment with MDA was bogus. First it all depends on what you are looking for, if you are looking for growth in muscle and...
Except that cardiazem does something ...acording to Wayne anyway ( so that suggests it was not bogus ) Or that you don't think Waynes experience is valid, or...
I'm just getting back to these emails because I wanted to wait to have time to read it all. So I wanted to thank you for this email. I had thought I had read...
I am currently taking 2.5 g grams a day. I took 5 grams for about a year and ramped it up to 25 to 30 grams a day for a month or so. I did not notice...
Here is some more general comments on Creatine. Dr. Tarnopolsky's study on MD patients should be available from MD Canada. Note the 3 gram dose referral for...
In the following paper I note the reference to Verapamil which I take. Fascioscapulohumeral muscular dystrophy: A progressive degenerative disease that ...
Having two different MD in one family is exceedingly rare. Never heard of it. Could it be that your brother was misdiagnosed, and that in fact he has FSHD (you...
Nice to see that there still seems to be a little controversy.. May I be a little polemic?: where's the problem? somebody claims to have found a drug that...
Hello friends! In a couple of days, I'll be off to France with my 8 year-old son, and will travel around with him to show him his country of birth. It's going...
Ryan, that is awesome! Good luck! I hope it is a wonderful experience. I'll check your website for an update. Ashley ... Triathlon on July ... MD). I hope ...
Myasthenia Gravis (MG) is an acquired disorder, not a genetic disease, so it is possible that your brother acquired this just like he might acquire another...
Ahh, its never that simple. Firstly the anecdotal experiences of 3 people do not a case make. ( Although thre may be more than 3 in the core proponents camp...
Reminder If you have not yet registered and are planning to come, please email me by Friday. There is still space available. We have a great international...
For some reason this message got posted when it was not yet complete !! Most odd since I did not press the 'send' button.... Blame it on the sweltering heat...
We are still accepting registrations. Please contact me if you have not done so yet. We are expecting a great international atterndance and excellent...
I have thought and written about Reactive Oxygen Species due to misregulated mitochondrial energy production underlying the muscle cell death. The rsearch in...
Well, with respect, Mike Frasier was supplementing with Cu, Zn and Mn well over 6 years ago and was discussing those, SOD and the effect of Fructose/Sucrose...
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