Maybe I push myself too hard. At 52 years old I am severely affected with FSHD. From Monday to Friday I am on the go from 6am when I get up until I lay down...
Woohoo sis!!! Is David coming too? I wonder what kind of adventure awaits us this time?? ... From: dawnlca To: fshsociety@yahoogroups.com Sent: Monday, May...
Yes, I tend to agree with you Rose. Valid though Waynes experiences may be, he does tend to generalise about others based on his own and thus see the cause of...
... <rogawe18@...> wrote: I've never needed more than 5 or 6 hours sleep a night. Even now I seldom get more than 61/2 hrs. But there is the odd time when I...
... it sounds silly but part of me is hoping I need a Bipap because I want to feel good the next day after my usual 10 hours sleep which I do not. If I don't...
I like your theory Rosemary. I also agree that generalisations based on observations of yourself are not always accurate. I've also noticed something...
... it sounds silly but part of me is hoping I need a Bipap because I want to feel good the next day after my usual 10 hours sleep which I do not. If I don't...
I only set an alarm clock radio if I have an esrly morning appointment which is rare so I sleep until my body is ready to awaken of its own accord. The body...
I did not realize you were able to do so much. It is good to keep active but not over do it. I would love to see you on a BIPAP for a 30 day trial to see if it...
With FSHD the number one aspect to be evaluated is hypoventilation as a cause because of our possibility of weak diaphragm muscles. Always look for the cause....
... <Magskelly24@...> wrote: Mags I'm 64 and in a w/c full time. I'm not very active at all. I'm tired just reading about how busy you are. When I go out...
Hmm, interesting theory, Ray! I do that to help get the bed starting to warm up, but lately have deliberately left my nose outside the covers for intake, and...
First of all I have to say you are not correct in many ways. It is a fact that Oxandrolone is toxic to our liver, but the MDA had begun a study for our disease...
Dear Friends I for one don't know where I would be had I not listened to Wayne's suggestions. I had even done the sleep study at our local hospital and foound...
Dona Wagner
mainbird@...
May 2, 2006 2:06 pm
7553
May 2, 2006 Lex., MA 02421 USA Excellent news! Wayne, thanks for your persistence and help. Though fatigue may not be solely attributable to this issue – ...
Like many drugs they are great for the drug companies, doctors and surgeons. After making money selling this drug they can sell you other drugs to "help" your...
Ann Retention of carbon dioxide will make you feel awful. The longer you sleep the more CO2 you retain. What is much more alarming is the increased danger of a...
We are dealing with FSHers who have weak muscles. Some of us and I think many not yet diagnosed have weak diaphragms which are prone to retaining Carbon...
You had the courage to lead your doctors and force their hands to help you. You were getting close to death to speak bluntly. As your sons breathing muscles...
My doctor of Respirology mentioned that many suffering from hypoventilation feel a little relief with a fan. The BIPAP is just a computer controlled fan...
Hell! Dan these guys and gals are a tough sell. I could sell ice cubes to Eskimoes easier. LOL For me fatigue went away with the Ventilator as did all...
For 30 years I put fatigue down to FSHD. Now I know better. One does not equal the other. ]--- In fshsociety@yahoogroups.com, "fshsocietyforum" ... on ... ...
So a little poision is good for you. The chinese herbs look better to me as a choice. Neither are likely very effective. Look at the use of Steroids in DMD....
Wayne, please read carefully.. You stated that anyone who sleeps for 10 hours should feel rested and perky. Your words That statement is incorrect, unless you...
Strange !! But yes, much like you and Rosemary I also tend to sleep cocooned. I used to pull sheets up round my ears but it always annoyed me when they...
Well, its similar to albuterol, which several of us have trialed. Except that Clenbuterol is supposedly a little more hazardous to use, with potential for...
If anyone feels awful after sleeping ten hours there is a problem there. If you sleep ten hoours your body decides that it needs it. Fufilling that body...
