Hi twiggy,very interesting footage you have sent,i will look into them in a lot more detail later on.Its New Years day and if you know anything about us Scots...
hi olga, welcome you sure sound like a lot of us! vickie [Non-text portions of this message have been removed]...
tuzwoo@...
Jan 1, 2005 3:31 pm
513
hi there my friend brandy! glad to see you joined in the postings. hope that you had a great new year. love vickie [Non-text portions of this message have been...
tuzwoo@...
Jan 1, 2005 3:31 pm
514
hi. every time i get blood work done they check my Cpk LEVELS. in this way they can watch for the more activated times of my FSHD.mine has never been as high...
tuzwoo@...
Jan 1, 2005 3:32 pm
515
happy new year to you all! vickie [Non-text portions of this message have been removed]...
tuzwoo@...
Jan 1, 2005 3:32 pm
516
hi ashley, i too suffer the almighty great pains of FSHD. i take ibuprofen daily,but like you i have times when i really REALLY hurt. i swear this...
tuzwoo@...
Jan 1, 2005 3:33 pm
517
... I'm not sure about the 5% of people who do not test positive. I'm sure that some of them are mosaic, some are falseley negative due to testing error and...
hi all, Here is my "story," i hope that I do not bore you with it. my brother was training to go to West Point.he was 16 at the time. he is the only son out of...
tuzwoo@...
Jan 1, 2005 5:20 pm
519
... Phil: just make sure you keep this vehicle on the ground!...
... Azade, I have been taking CoQ10 for a number of years because I believe it increases my energy levels. Over the years I have taken different quantities of...
Our regular times are Sundays at 2 PM and 9 PM Eastern Time in the USA. We are still in Michigan visiting family and friends. We are having lunch/dinner...
... to rule our lives. i will continue to live my life to the fullest. i will still be "me" no matter what. life gives no gaurentees to anyone.if i end up in a...
... wrote: Azade, I have been taking CoQ10 for a number of years because I believe it increases my energy levels. Over the years I have taken different...
... aircraft by ... you ... I will do my best, Bob; thanks. The hand controls will be installed on Monday by a local vendor. I am angling for a VA grant to...
January 1, 2005 Lexington, MA 02421 USA To the FSH Community, Wishing you all a healthy, prosperous and sweet New Year 2005! May this be the year in which we...
Interesting story, I have experienced all the symptoms including the falls that you have and more really severe ones. Not trying to out do you there. I am 59...
My family name is Nesbit so there is a Scottish ancestry. I have vacationed in Scotland a number of times and i just love the highlands and the sea coast. I...
let me know how you like your new jazzy! i use one when i go to the theme parks etc... that way the rest of the group can do their thing and i don't hold them...
tuzwoo@...
Jan 1, 2005 10:37 pm
532
About FSH being generally tall: although I am 5'9, my grand-mother, who had FSH, was 4'8... That's why I don't think that height has anything to do with it! ...
I often pondered over this. "Maybe everyone else who is effected with FSH likes cheese as much as I do and this is the cause..." :-) Does anyone else...
Hi Vickie: I really enjoyed reading about your life. You are an inspiration to us all. It's wonderful that your co-workers are so understanding and so ...
Zanni, My family tree for fsh traces 4 generations. The risk of passing it is 50%. That means that it is not a guarantee that all children will get fsh. True,...
I don't know about this uneven hair growth thing because as a woman, I don't shave my face? Guys, how about you? Ray, I know what you mean about facial...
Some possible common traits? I really haven't met many people with fsh, but I've noticed from some pictures I've seen that many of us seem to have prominant ...
... they are still in business we will switch back over. Until then we will stay with the Yahoo! system. ... Dan, I don't know how others feel, but I think...
So we have some biology majors in this group? Though I got a "D" in biology in high school, I went on to major in biology as an undergrad and years later as a...
I am also only 5'4 sad to say. My father's side of the family (the fsh side, which is extremely muscular - with the exception of those of us without muscles )...
