Clem, Are you sure that specially made shoes is the right way to go? It means that you won't have choice of footwear for different occasions. Also, I don't...
Amy, I find your question to be an interesting one. Indeed we may need to have the gene off at some point, perhaps to destroy deffective muscle tissue or ...
Just recieved dose 7 of 13 in the myostatin drug trial and thought I'd post an update. Well folks, no dramatic increase in strength. From those I've talked...
Anyone in Minnesota, Lori Heater and I are going to be in the St. Cloud, Brainard, Nisswa, Breezy Point areas August 25 through the 27th to visit Lori's aunt...
ToeOFF® Walk of Life ToeOFF® is a new generation AFO, covered by several patents. The design absorbs energy at heel strike and returns it at toe-off, ...
Some other options: http://www.townsenddesign.com/products.aspx?ID=11-0 http://www.ankleshop.com/footup.htm http://www.ghotex.com/dictus2.html ... means that...
For what it is worth, For the last year and 1/2 I have had the Ypsilon AFO by Camp (the same people who make the Toe-Off) and it has been very comfortable,...
Paul -- I retired to here the day I got my scooter, and started riding it where-ever people walked. Residential area here with a palm tree lined 4 lane road...
I bust my gut riding a bike 3 days a week for 1.5 hours each.I'm trying to get rid of my belly.I'm skinny everywhere else.But the only thing happening is I'm...
You need to keep in mind what is happening in the diseased tissue. Not only are the muscle fibers degenerating away to nothing, some of the fibers are too...
I'm sure the exercise is benefitting you in many unseen ways, but it IS unsettling when you see it effecting body parts that don't need it, and nothing ...
... wrote: Clem try going without carbs for a couple of weeks and see if that reduces your gut. Some of us tried South Beach diet awhile back and my belly...
I was wanting to know if all the info i have read is correct in saying if you FSH that you will be in a wheelchair by the age of 40, and if so would anyone...
I was not in a wheelchair until age 61-Jim in KY tereenaofarrell <no_reply@yahoogroups.com> wrote:I was wanting to know if all the info i have read is correct...
Hi! It's been awhile since I have been here. I'm trying to get used to the new format. My post is about my son who has lost ALOT of muscle in his arms and...
Wouldn't it be great if employers paid wages to disabled workers relatively greater than those they pay to there fit workers, in order to address the issue of...
... <no_reply@y...> wrote: Tereena there isn't an "average" age as not all people with FSH end up in a wheelchair. The number I've seen quoted is approx 20%...
Tereena, The other's are right, there is no average, this disease is variable. I am 62, retired and on Social Security Disability. I started using a cane...
It occured to me that since myostatin is not a cure, but rather a control over the protein made by our muscles, then if it works, we will build more muscle....
See if you can get to an occupational and or physical therapist. They can give your son some theraputic exercise to possibly slow the loss.He might want to add...
Steve - I have been wearing a pair of ToeOFF® AFO's for 3 or 4 years now AND I got them free from the NHS. Looks like the usual post-code lottery in operation...
Thanks Susan, I have heard of creatine and coQ10 before so I will look into dosage. I think I will have my son go to therapist. Its been over a year. Thanks...
In our family there is alot of variability. My Aunt was in a w/c by the time she was my age (45yo). I am able to walk with the help of AFOs. I think that using...
Over age 65 and dependant on wheel chair, except still can walk 20-40 feet holding on to wheelchair. Age of 40 is old wive's tale. Never used wheelchair...
I have a suspicion that it depends a lot on how active you are to begin with. My grandfather was a "truck gardener." In other words, he sold his garden...
43 years old here and I've just bought my my first cane. I don't really need it for support yet, but it's a real help with balance and compensates nicely for...
Please forgive me if this is a silly question, but one thing that has bothered me since I first read of the myostatin inhibitor trials is whether the reduction...
Welcome, Tereena. Good to have you with us. Please come back often. As you have already read here, the one constant of this disease of ours is it's great...
