Dear friends, I send you the communications in english about FSHD (& related) at the congress of Myology in Nantes - France. Your coments are welcome ;-) ...
First of all, Greg is having his muscle biopsy tomorrow at Mayo clinic. We have to be there at the ungodly hour of 6am (its about a 40 minute drive.) Then...
... hi amy the whole point of my "independence" is to avoid the buddy system. but then - werent we taught not to swim, horseback ride, bicycle and other sports...
Thanks, Ray. I checked these things through the Control Panel, Power Options, Power Meter which showed AC power working and Battery 97% charged. I took the...
While chatting Sunday, Ray and I decided it was time to remind people that this FFF affair (more alliteration, almost) would be happening in just four weeks....
What is interesting about this controversy about stem cell research is that there is opposition to the President from the same people who are also vehemently...
hi everyone i received a call back from RedMan PowerChairs this morning. the sales rep. guy was very courteous and well versed. as he began taking my 'stats'...
Hi Paul! I regret that I plan to be gone during the time of your get together. I learned this week, however, that there is some kind of big event in Orlando...
Try "The Scooter Store" mytishtash <Llhcdh@...> wrote:hi everyone i received a call back from RedMan PowerChairs this morning. the sales rep. guy was very...
I find the pricing on powerchairs and some scooters to be appaling if not a downright offensive outrage. I know some companies would like to claim that these...
Dear Linda, Check with the local MDAUSA. They have an "equipment closet" concept here on the east coast -- where when soemone passes the equipment is donated...
hi i nearly forgot -- can u blame me? just a bit frazzled yet! LOL ok- i talked with tom at stand-aid about the rollaid. he basically stated that he has...
hi everyone to answer the question of new over used. im not opposed to used at all. but, given my physical needs - we are all different - used wouldnt be the...
Thank you Manual, These reports make very interesting reading :-) Ray ... From: Amis FSH Europe To: fshsociety@yahoogroups.com Sent: Wednesday, June 01, 2005...
Yep, it would be nice to see a small crowd of people for lunch on that Sunday (the 26th June). Rosemary, sorry you can't make it. I'm really looking forward...
In a message dated 6/1/2005 8:00:53 PM US Mountain Standard Time, Llhcdh@... writes: well now -- i can see that this is gonna be a difficult situation for...
... Linda, $29K for a powerchair is outrageous. Maybe not, if it could levitate from the ground and fly you where you want to go. I didn't pay for my Jazzy...
Rosemary, I am sorry that we have to miss this opportunity to meet. I hope we can do so on some other occasion. I poked around a little on google and could...
Right on Steve-There are overpriced and the reason being that the US Govt. is in fact subsidizing this industry as well as the Medical establishment. The...
Interesting Catherine, how about scary? Last Sunday morning on the TV show Sunday Morning was a piece about a doctor whose field is ALS research is battling...
Bummer, Linda, Give our friend Mike a call. I remember him saying that through some creative funding mechanisms he got his Chairman at no cost to him. Paul ...
I agree, Phil, that $29K is going to buy Linda a very fine chair. Our memory says that in 2001 we paid something less than $7,000 for TLA's Jazzy 1120 with a...
June and July will be busy months for FSH Groups. Here's the ones that I know about: June 25 Saturday - lunch/dinner in LA (Santa Monica) June 26 Sunday -...
Thats the US, It doesn't work the same way here in the UK. And of course, over here we are caught out by the usual problem of imports being valued at a 1 to 1...
Steve I would recommend (since you still can walk a few steps) for an all terrain vechicle a two wheel scooter with those big fat wheels. It is like riding a...
Hmm, if I picture that correctly, it sounds like something you straddle like a bike, in which case thats a no go, plus I don't have enough upper body strength...
Linda if you are on disability (ssd) you will get medicare after 2 years regardless of your finances. Have you tried going to MDA they will pay up to $2000 for...
In case you haven't noticed all things related to handicapped are outrageous. In any other situation it would be called gouging and be illegal.- ... if not a ...
- You are absolutely correct. I purchased a walker through a catalog and paid $100, a medical supply place told me they charge 350 because medicare won't pay...
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