You have brought up some very interesting issues here. Being a Veteran that does not have FSHD (MY spouse does) but receiving my medical care from the VA...
Yikes! I found & read the J.L article. It reinforced my opinion. I was steaming when I read the recent issue of Quest magazine. There was absolutely no mention...
I noticed that also. I think we SHOULD feel slighted, especially if we are one of the largest groups, as we've been told! Just doesn't make sense to ignore...
Hi, Willow. You are taking me back to 1990. I was stationed at MCB Quantico, VA, so the trip to the Naval Hospital at Bethesda was about a one-hour drive....
....I live in Houston, Texas and I am very happy with my MDA Neurologist.... I can appreciate that, but there is a reason for it. MDA targets its services...
Hi Tom! Thanks for your reply. I contacted the VA asking about my Pension/Compensation benefits and Ratings for Medical benefits. I have never written a...
Hi! Thank you for your reply. I haven't thought of Quantico in Virginia or Beaufort/Parris Island in South Carolina for a while now. In the late 1960's-mid...
We left Florida a week ago Sunday and motored to western New York where we stayed with our very dear cousins for four days. Then we crossed Canada to Michigan...
My son retired in Army recently after 20 years service. I asked him this 4th July morning, telling him you were denied benefits as "pre-existing condition."...
FSHMD ended mine stint before I got started. Darn! I lasted 110 days. When I went to basic I first went to the fat farm (Fitness Training Unit they called...
Thanks, Chris, for this update. Since the reports were to be made Jone 10 - 13, two weeks ago, can you dig out what the reported? Paul, the MOST curious...
Hi all This is awesome! And I'll bet some laboratories are going to do a mad rush to acquire one, and that's very good for us! Excerpt: "This opens the door to...
Ruth, From my experience with MD, alot of doctors and PT's have advised me not to exert myself too much as it will increase the rate of degradation. However, I...
Hi, My name is Mark. I am 23 and currently living in San Diego. I recently joined this group because I am tired of always feeling alone and that no one...
Mark, Trust me your not alone. I have been lurking around the forums now for a few months and its seems to contain a plethora of great people. My name is...
Hi Mark, my dad was dx with FSHMD when he was in his mid-70's. He had symptoms in his late 30's with being unable to raise his shoulders high...blamed it on...
Hi Mark! Sometimes something happens or something is said that helps put things in perspective. This happened about 3 weeks ago. It was early morning, and I...
Welcome, Tanya. Good to have you with us. Please come back often. My wife and I have driven mini-vans for 20 years. We are both handicapped and have found...
Hi Mark, I wasn't diagnosed til I was 55 (I am now 66), but was starting to notice a weak knee 12 years earlier. By the time I got my dx I felt relief that it...
hey, if you would like to talk over aim my sn is kmigs26, or you can look up my facebook. i am 22 and have fsh and my progression sounds exactly liek yours. my...
Hey Kelly, Thanks I would definitely appreciate that. I will set an aim account and hopefully we'll have an opportunity to chat. I'll give you my sn as soon as...
We own a Honda Civic - about the same size as a Carolla - and lease a Hyundai Santa Fe, which the lease is about to expire on. The Civic used to be what I...
I applied to Christian Contractors to build my ramp. They consulted me as to what design I wanted, and built it for me without charge! (I did have to wait...
http://www.sciencedaily.com/releases/2009/07/090706171454.htm Muscle Damage May Be Present In Some Patients Taking Statins ScienceDaily (July 6, 2009) —...
Hi Mark, I've just read your email & am so glad that you decided to join us & to write about your feelings. Welcome to our warm group. I'm sorry you missed our...
Hi: I have some light weakness in face muscles and shoulders, but I can walk, move my arms, etc, at a very normal way. Only some fatigue comes very fast. It´s...
Hi Mark, I read your post and I can identify with the way you feel, I don't think that others who have not suffered the emotional and physical pain of this...
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