Thank you Paul, I was out of Boston and could not answer you. We were on Cape Cod, had small vacation, I was so happy watching Anna's easy breathing on the...
Can you believe this one. Besides losing our muscles, now they're taking our genes. I read the editorial in the New York Daily News today and found this out. I...
Thank you Paul and Wayne, My son's illness has turned out to be swine flu so I am a little preoccupied right now with planning distractions for our quarantined...
hi, i had something similar occur to me, i was sick with stomach flue i didnt get much sleep. when i woke the next morning and sat in my wheelchair, my heart...
hi, im 28 and have had bowel problems for years. i am also severely effected by fsh. i too have problems gaining wait, i weigh about 110 and i am 5'11 tall....
Bring backed up or impacted is most often the result of not enough fibre in the diet. Ground flax seed, psyllium and veggies all help along with lots of water...
Yes, I have some very great concerns about some of the "inventions" that the US Patent Office has allowed people to claim ownership of. Certainly the methods...
A funny thing happened to my hubby & his elder daughter. They both have habitual bowel problems & impaction. They've tried fiber of all kinds, more fluids,...
Hi my brother-in law's douther is pregnent, so evrybody now at last did the test. My hobby- no syptomes- got 25, his brother 20. also no symptomes. my very...
You and your sister should both be tested, if you want to eliminate your immediate family as the source and thus assume her grandchild won't be affected. You...
Hi all Excerpt:" Dr. Rudnicki's team found that the Wnt7a protein, when introduced into mouse muscle tissue, significantly increased the population of these...
I was diagnosed with FSHMD a couple of weeks ago. I am in my early 50's and was not notably affected until recently. Can see some things were haopeening with...
Welcome Douglas, what you say makes perfect sense and is very typical. You may find that you get "foot drop" if you don't already have it (this is where the...
Hi Douglas, It all makes sense, if FSHD ever really makes sense, Haha! I'm sorry about your diagnosis, but then again, it is good to have a name to put on...
Hello Douglas, I was diagnosed when I was 57, now 62 and I have experienced everything you describe, including stumbling on a bus, I always ask the driver to...
Hi Douglas! Everything you write and are describing makes alot of sense - and is incredibly familiar. I was 48 when it felt like I had been hit by a "fast...
Hi everyone, Lately I have been having moderate numbness of my skull, as if I had novacaine. It usually goes away within ten minutes of waking up. Also...
Numbskull? ;o) (Oh Julie. You made that too easy for me - sorry!) Is your whole head numb? Most numbness as well as tingling, comes from pinching a nerve...
This sounds like very good news, indeed! Go you scientists! Go you researchers! Move with great alacrity! Paul, who finds himself getting more impatient as he...
Hello......... I would like to know if anyone has experienced the loss of their neck muscles. My daughter who was diagnosed at age 12 (she is now 25 yo) has...
Hi Julie, I don't know what that is, so I can't be of help there, but I want to suggest you go to your doctor right away to get an evaluation. Keep me posted....
I don't know if it's at all related, but I frequently experience numbness/tingeling in the right side of my skull, face and into my right arm. I see a...
Paul, if laughter is the 'best medicine', you should be a pharmacist. Tom W. From: fshsociety@yahoogroups.com [mailto:fshsociety@yahoogroups.com] On Behalf Of...
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