First of all: HAPPY 2009!!! I've been reading a lot of the emails but I haven't had one second to even post a greeting so I hope everyone is doing well. Eli...
Frog, does this mean that although there was no improvement in the muscles of those taking MYO-029, that they then took one muscle fiber out of the patients in...
Paul, the study results may encourage the researchers to continue to develop myostatin inhibiting agents, since Myo-029 showed some effect, even though the...
Hello. I just joined and was trying to follow some of the blogs. Glad to know there are others who can help. My son and I have fshd and have not been able to...
"Myostatin is a gene found in skeletal muscle that's thought to be responsible for inhibiting the growth of muscle tissue in animals.The true effects of the...
Oh, my, Cindy. I am sorry to learn that you are going through such a tough time. Hang on tight to those around you and you will make it through to better...
Welcome candyspop! Glad to have you on board. I am fairly new too and do not post that much, but read and get a lot of help from that. How old is your...
I am new also, i have FSH and i found out that my saon had MD just waiting on more tests to find out what form he has he is 11 months old. I have a fairly...
Hi! And welcome to the group- everyone is wonderful here~ Look forward to getting to know you and your son! How old is your son? Mine is 13~ Stephanie ... ...
Hi everyone! My name is Candace and my son's name is Zach. He is nineteen and was diagnosed with fshd at age 14 which is when I found out about me. I never...
Welcome Megan I am rather new here as well and the folks here are wonderully welcoming and very informative as well. Where do you hail from? I am from New...
Candace I have identical twin girls who are 17 that both have FSHD, one is going to college next year for music as well. We should connect them as they...
Hi Anne Marie, Nice to meet you. We are in Louisiana. I do feel much better after hearing from so many people in the same boat as me. My son Zach is 19 and...
Just read your second email. I cant imagine twins. I will be sure to let my son know that we are talking and I think it would be great for both of them to...
I am in Arizona. ________________________________ From: AnnMarie Richard <annmarier1960@...> To: fshsociety@yahoogroups.com Sent: Saturday, January 3,...
Any other New Englanders out there? Sure would love to also connect with neighbors as well as those of you who live all over the place. My family heritage on...
What part of Arizona? I am in Mesa Megan ________________________________ From: sandra dusenberry <kookycrafts@...> To: fshsociety@yahoogroups.com Sent:...
Hi Paul, Johnson & Johnson formally announced that they were shutting down production, development of the iBot and iBot technology because there wasn't a...
Hey all, First let me wish everyone a most Happy New Year! I have a question.... Matthew, upon reaching 13, now will tell me he is 'so tired' and then proceed...
In MY experience, when I was a teen I went to camp, and I could keep up with everyone else all day M - W, but by Thursday, I wasn't feeling well, and would...
That does not sound right. I would suspect either severe depresion or hypoventilation during sleep. What is the diagnosis for the tremors. I am just terrified...
My family used to have a winter home in Sun Lakes. We went up Chandler way to shop. ... welcoming and very informative as well. Where do you hail from? I am ...
When you say tremours, could you be referring to involuntary twitching muscles? ... is a ... 9:30. ... back. ... all ... in ... the ... if ... little :)...
Hi Stephanie, I don't know very much about the differences between FSH that sprouts its ugly head in the early stages of life and FSH symptoms that appear...
Thank you all for your responses! Gosh where do I start... let's see.... the 'tremors'. We thought they were seizures and took him to Duke to his ped neuro...
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